Has anyone ever noticed any correlation between fruit juice RLS?
FRUIT JUICE : Has anyone ever noticed... - Restless Legs Syn...
FRUIT JUICE
27 Replies
•
Hi Phogan,
I don't drink fruit juice but I do eat fruit. Persimmons certainly cause my rls. I suspect strawberries too. This is such a fluctuating condition it is difficult to be sure of anything. Several times I think I have identified a trigger only to be wrong on another occasion. The consultant neurologist at the RLS AGM said she had found no proof of dietary triggers but everyone is different.
Sounds to me that the neurologist hasn't gone looking for evidence of dietary triggers. Its not hard to find Perhaps she is demanding a full blown statistical experiment. A noble aim that she should be capable of organising if she cared.
Graham
Very unfair Graham! The lady deeply cares or wouldn't have travelled from Newcastle to London to talk to us at the AGM. You are taking this out of context, she was asking us for our triggers and she commented that she hasn't found a food trigger that affects everybody. We are all different!
According to the report she said she had found "no proof of dietary triggers" I understood that she is a professional, qualified neurologist. One of the reasons for attending your AGM should be to meet a wider range of people suffering from her specialty in the hope that she will pick up hints like "I get bad RLS if I drink orange juice"
I paid a useless neurologist and told him that I had found a relationship between diet and RLS. He told me there was nothing he could do to help me and sneared at the suggestion it was diet related. Looking back I don't understand why I paid his $350 bill! I think I was so tired that I wasn't thinking properly. I was desparately trying to hold onto my job on very little sleep.
I also contacted the leader of the sleep group at a major research hospital and told him the same thing. He replied that I "obviously" didn't really have RLS.
I have been shocked at the number of people who post to this forum who have been badly advised or misled by the medical profession at the expense of many happy years of healthy life.
Graham
• in reply toGraham3196
Hi, Graham. Me again. (Pardon my sarcasm ahead of time.) Maybe she got a free trip to the forum, a few days off, and got to see a little bit of London. Not a bad return for attending and giving a lecture. Sounds like she had a somewhat closed mind and forgot she might possibly learn as much as she taught. From searching the web it seems to me that there is plenty of documentation about dietary triggers for rls. I'm with you on your response to the post that assumes this neurologist cares because she made the trip. Take care, Burma
I agree with john_naylor. You were not at the AGM Graham. Kirstie Anderson has kindly given up her time two years running to give a talk at our AGM. We are hugely grateful and so are those who attend. She is utterly devoted to her RLS patients and researching RLS.
Forum member Shaft1952 is very happy to be a patient of hers and since the first appointment, has spoken very highly of her.
Hi
I wasnt being harsh toward Kirstie I was commenting on the report that she answered a query on orange juice by saying she had found no proof of dietary triggers.
If she would like to do some research into this I would like to contact her and give her some details and a contact in Australia who has some useful information for her.
A scientific practitioner should welcome any information that is outside her knowledge and I think it would be great for her to look into others experience and see if she can test a suspected correlation. It would be a great project for a PhD student.
I have participated in a couple of such projects as a test article. The proposals didn't help me and the scientist never bothered to send a copy of the report as promised. Strangely one of the potential reliefs for RLS did nothing for RLS but was a great help for my sciatica. It was a strange exercise routine but it eventually caused a strained muscle and I haven't been able to do it since. I wonder if it would have helped my RLS if I had continued for longer.
Cheers
Graham
The consultant you are talking about is excellent & very much involved in research into rls, I speak from personal experience, I find her very knowladgable &understanding oc people with RLS. She will look at research if she can't answer your question. Then her secretary contacts you with information you need & advice.
Burma government have you noticed the print on all the packaging gets more and more minuscule?
• in reply toRetren
Absolutely! This is really true; I have a little square pocket magnifier I carry in my purse. (About the size of a credit card and can be found in most drugstores, Walmart etc). I always check labels, especially sodium content and the nutrition labels are sometimes so small I can't even begin to make them out with regular glasses.
Retren• in reply to
Burma GI have a jewelers loupe and still squint to see of course it,s obviously done on purpose.
• in reply toLoisTonya
The juice issue is very interesting. Here in the US a lot of juices (and other beverages) are 'fortified'. With what I don't know. Usually they say calcium, Vit D etc. but they don't say what fillers or chemicals they may also have added to get the 'fortified supplements' mixed well into the juice. Food for thought. I try to stay away from fortified foods. It seems to me that they take out a lot of good nutrition sometimes and replace it with a little bit of something else. Kind of like a step forward and 2 steps back. Just an opinion.
burmag,
You did not attend either of the last two RLS-UK AGMs where Kirstie Anderson spoke and this year ran a workshop in the morning too. It was in her own time and she stayed longer than anticipated to answer attendees questions. I find your comments harsh about this speaker and without foundation.
• in reply toKaarina
Kaarina, Sorry. You're right. I think sometimes I've become too skeptical about healthcare providers motives. Will try to do better. Thanks, burmag
Retren• in reply to
This condition is so wearing plus the medications to contend with not to mention the difficulties regarding prescriptions and yet you are all so stoic and keep on going .I am always impressed by your struggles to deal with these adversities.
• in reply toRetren
Right back at you, Retren!! Yes, it definitely is a wearing syndrome!!! I told my husband yesterday that just surviving was proving to be harder than it should be. We should all be given medals for dealing with this demon syndrome!!!!! And we should congratulate each other for staying alive! I'll go first:
CONGRATS EVERYONE!!!!!!!!!!!!!!!!!!!!!!!!!
• in reply to
Ditto!!!!!
It may not be fruit juice as such which is causing the RLS, but the fact that the fruit juice has a high fructose content, and that it is fructose which is the culprit. Try to identify all sources of fructose and cut them out of the diet to se if it makes a difference. If it does, you may still be able to tolerate a certain level, but just cut the intake down to a level where it doesn't cause a problem.
• in reply toEryl
Makes sense to me. Fruit juice>sugar>rls pain.
Hi there. Years ago I discovered that juice drink (which has additives) really aggravates my RLS. The other fruits which trigger my RLS are grapes, raisins in a big way, strawberries, apples, peaches and nectarines.
Many fruits are forbidden (I couldnt resist it) by the FODMAP diet
I would suggest that following the FODMAP or low chem diet process is a more efficient and effective way to discover any food triggers.
Cheers
Graham
Cherries which I love make me feel I am going to have a heart attack who knows it may be even thorough washing they might have some sort of spray still on them.
I think there are different triggers for different people. Someone said on here wine was a trigger for their RLS, yet for me, it is not. (Otherwise on my recent trip to Britain where the wine flowed freely at the birthday party, etc., my RLS would have been REALLY BAD, BUT it was NOT AT ALL - I hardly felt it.) I have found things like MSG (which I avoid like the plague, but still sometimes inadvertently ingest from someone else's food) gives me all kinds of weird symptoms, RLS only one of them. Who was it who said (Hippocrates, maybe?) 'One man's food is another man's poison.'
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