I have full body RLS" not creepy crawly wct..But very painful.no sleep.2x a night I take a real warm bath. But only last a couple hrs*

[Makeitstop]

Gabapentin and mirapex won't help* too painful to sleep..I crash every 2nd night..need relief! ..can't use cpsp machine because of pain..any suggestions?

Miloxicam!

[Eryl]

Doesn't sound like rls to me, maybe fibromyalgia. I've read that too much gluten can cause that.

[Ikeeptrying]

Call your doctor and tell him. Sounds like you need an opiode pain pill just to give you relief for a few nights.

[Joolsg]

What dose of mirapex are you on and how long have you been on it? Have you read all the posts about Augmentation? It could be that and you may need to get off it and try other meds like pregabalin ( Lyrica) or OxyContin.

[Makeitstop]

My Dr just prescribed..Horizant...any comments??. ( if.. insurance approves it)

[Hidden in reply to Makeitstop]

Just saw this thread.

The only reason I'm going to respond here is because you're looking for Horizant comments and I took Horizant for a month. I had complications with it, so took myself off. Did you say you're on Mirapex? If so, is your doc adding the Horizant? The reason I ask is because I was already on Pramipexole (Mirapex) when prescribed Horizant. After 2 days on Horizant I started feeling symptoms that eventually led to my diagnosis of RLS. It is not clear whether the Horizant caused these symptoms or whether it coincided with my Augmentation on the Pramipexole (which I went through for the better part of a year). As I don't think many people are on/have been on Horizant, you are welcome to send me a message. Just click on my username and "message" on the top right. I'd be happy to help you out.

[Hidden]

Hi, MakeItStop. I agree with all of your replies. You need some kind of pain pill to help you sleep. Another reason is that not being able to use your C-Pap machine can cause you a whole host of other problems. Also, I have fibromyalgia-don't take meds -but eat a healthy plant-based diet most of the time and I do avoid gluten. Once in a while I fall off the gluten-free wagon and hurt like the devil the next day. I'm not sure rls and gluten have a connection but I do know when I eat wrong and the fibromyalgia flares up it makes coping with rls much, much harder. I also use a c-pap machine and it ismy sleepdoctor who seems the most knowledgeable about rls. He is the dr who suggested checking my ferritin level and working on getting my ferritin level higher is slowly making a positive difference for me. My sleep doctor happens to be a pulmonologist but others have a neurologist. The important thing is that the doctor "gets it" about your pain and doesn't dismiss you. If I encounter a doctor-for whatever reason- that blows me off I find a replacement asap. Keep reading as many posts as you can. There is so much help in this blog. Many ideas and things to try that doctors often have no idea about. It's all about trial and error and finding the suggestions that work for you. Thanksfor following my posts. Hope they help.