Any success stories following serum Ferritin infusions?

[Nightingale-5]

Just had two serum Ferritin infusions over 5 days. Has anyone had any dramatic results from this? Ever hopeful!

[AnneJende]

YES!!!!! Now mind you my feratin level was at 11ng/ml. I also had rls come on quickly although not only on my legs but also my arms. I had this done 2 months ago (don't quote me but feel free to read my journey).

I take one carbadopa levodopa at bedtime and had my neurontin increased a bit.

I'll have my next blood test at 3 months out. Feeling great! No breakthroughs...everyone must now knock on wood as I always direct you on these posts! 😊

Hope it at least helps you!

Note I had 5 infusions over a bit over a week.

[Nightingale-5 in reply to AnneJende]

That's good news. I just had two infusions over 5 days but I a on 6mg of Ropinerole now. My Consultant is Professor of Neurology and I trust him completely but once my system gets used to this level of Ropinerole I don't know where do can go from there. I also take Calcium and Vitamin D as I have Osteoporosis and because I'm vegetarian I also take a Multivitamin with Iron, plus a Magnesium tablet.

I have other health issues as well, I am considered to be disabled, ant take a large amount of medication. Of all the health issues I have RLS has by far the worst impact on me.

[AnneJende in reply to Nightingale-5]

Yes, I had gastric bypass surgery many years ago so I take a multivitamin for that, I wear an iron patch, also take B12.

I have many health issues too. Ironically one is epilepsy and I was already taking the neurontin. I am also on quite a few other meds too.

Can I ask where you had your infusions done? I'm in the U.S.

[Nightingale-5]

I'm in the uk