Some good news for me: Hello everyone I... - Restless Legs Syn...

Restless Legs Syndrome

21,450 members15,125 posts

Some good news for me

5 Replies

Hello everyone I just want to share someing with you because I'm so happy, even though I'm new here and have only joined last week, i as referred to a consultant whom I saw end of March who decided to send me for a brain scan because I've also had trouble with balance, walking in a straight line, and my hearing has suddenly gone supersonic, anyway the GP and the consultant had both decided a scan would help with anything RLS and what they though was MS,, I've been worried for months, I tried not to look up what MS was but i did while waiting and it put the jibbers up me, anyway I've had a letter today to say what they were scanning for has come back clear! Thank goodness, I've now got to see a different consultant, what ever thats about doesn't matter because I've worried myself sick thinking thats what i had and thinking they would put my rls on the side lines but for now onwards and upwards with my new consultant and hopefully a new approach on treatment 😊😊

5 Replies
nightdancer profile image
nightdancer

I am glad you feel optimistic! people always think they might have MS, and so do some doctors. it almost never is, when we are trying to work out RLS. A brain scan is not going to show anything to do with RLS. But, am glad you do not have MS. :)

Joolsg profile image
Joolsg

Really pleased it's not MS. I have MS as well as RLS & actually, the treatments now for MS are so good, they can stop further attacks.

What we need is for them to throw as much money & research at RLS which is actually a far more debilitating disease because it affects sleep so badly.

Just think what they could do with the money & research!

Let's hope your new consultant sorts out your RLS. Good luck.

Jools

Maureen133 profile image
Maureen133 in reply to Joolsg

Let us know what he prescribes.

Bkc1777 profile image
Bkc1777

Very happy for you.

B.

NoMoRLS profile image
NoMoRLS

You rock it. Onward to new horizons.

You may also like...

Some good news at last :-)

and had a session with a holistic therapist who massaged my back, and really put pressure on what I...

AND NOW A WEE BIT OF 'GOOD' NEWS ABOUT ME

You may recall that I had a certain ambition to become a 'Patient Liason Advocate', which for those

Good news and bad news

gabapentin doses for RLS being much higher I suspect this wouldn't work. Many other consultants are...

Good news, hopefully REM

disorder). Q1) I think this means theres no trace, but does it mean that it still exists? thats...

Adding good news

enough that I refused to go in the opioid direction. What has worked for me and continues to work...