Parkinson's

[mama27]

My dad has RLS and has been prescribed medication that is used with Parkinson's.

Are there any of you that suffer with this & what medication are you prescribed?

Be great to here from you

[Madlegs1]

That's quite a normal prescription. Just given at a much lower dose.

Read up all you can on these two sites.

rls-uk.org

rlshelp.org

There is all the info you will need there.

Good luck.

[mama27 in reply to Madlegs1]

Thank you for the info I shall pass on to Dad

[datsoon1]

datsoon 1 here,i take simenet pills they are for parkinsons,they dont work when its very bad and painfull with the jerky legs i have oramorph for when it is really painfull

[mama27 in reply to datsoon1]

Thanks for reply.

All noted

[Smiler53]

Hi Mama27

Yes, quite normal to have these prescribed for RLS. I took them for quite a few years before I got Augmentation (meds turn against you and make rls worse) and moved on to Gabapentin. I'm now taking Oxycodone 5mg am and 10 mg pm.

This is a great site for help and understanding of this horrible condition. Pippins2, Jools, Madlegs1 and our Administrator Karina (spl) are very knowledgeable and give great advice.

Smiler53 x

[mama27 in reply to Smiler53]

Many thanks smiler!

My dad has had this problem for years

& I finally managed to get him to go to Drs. He is also due to have blood tests. A full MOT!

I will pass info onto him

[Jeanniebeannie]

Hi i get pramipexole and pregablin together and most times im ok sometimes not but works for me and hsve had rls all my life quite bad too .

[mama27 in reply to Jeanniebeannie]

Dads only been taking it for 3 nights & unsure if it's working as it doesn't wake him up only my mum! Told him to sleep in with her tonight so they can do a test. He's only on 0.08mg. Not sure if it works straight away or needs to build up in your system?

[Hidden in reply to mama27]

Hi mama, it sounds as if your dad has PLMD aswell as RLS, PLMD is Periodic Limb Movement Disorder, which means he is kicking and moving in his sleep, which he wont know, but your mum will as she will be getting kicked or woking up from his movements. The pramipexole should work straight away on the first night. He can go to the next dose up, and try it. but my advice is not any more than that. The RLS experts are saying if taking 2 pills are not working then it needs changing to a different med.

[LoisTonya]

I'm on Ropinerole which is used for Parkinsons.

[NoMoRLS]

I am taking klonopin. Can't take the DA's. It's working quite well for me at the moment.

[Narcis]

i take now safidamina which is an inhibitor of MAO-B of glutamat, seems is quite now for Parkinson's. 50 mg and doesn't work for me, I will try 100 mg precribed by my doctor (I have taken gabapèntin, pramipexole, and others, I got augmentation and now any of them work for me). I'm looking for alternatives (tramadol doen't work). Next will be oxycodone

[havalic]

I've had RLS for some years now and have been taking DHC for it and since taking it never had any probs except if I stop taking them (DYHYDRACODIENE) 30 MG take 2 twice a day

[FLAME43]

Yes my Prem pexola is prescribed for Parkinsons sufferers

[Tara1974]

Yeah I have severe. Rls and I'm on pramepexole and swear by it 3x 0.18mg a night I feel for your dad as it's horrible when it kicks in as mine can last for 8 hours if I've forgotten medication