I have now been off ropinirole for 3 months. Currently I am drug free apart from supplements (iron and magnesium). I have seen the neurologist and he is sending me for various tests and a sleep clinic (although what that will prove that I don't already know I'm not sure!) But at least he listened I suppose.
My query now is how other people felt after they stopped taking ropinirole. At the moment my legs are not too bad (I can only assume the iron has helped) and if I am careful with my diet as well then my nights are better than when I was on the ropinirole and it had started working against me. However I seem to be permanently anxious, slightly depressed, headaches, flushes, I have lost my joy in life, insomnia. I have read about DAWS and sincerely hope I am not suffering from this. Does anybody have experience of the long term effects of coming off ropinirole? Could this be what I am suffering from? I really wish I had never started it!