Hi I'm new here but a long term severe RLS sufferer. I also have Fowler's Syndrome, which is a neurological bladder condition, and have an implanted Neuro transmitter in my back. When I saw my Consultant Neurologist he said he had heard of a link between the two. Has anyone out there got this?
The condition is chronic urine retention due to lack of signals from the brain to the nerves which control your bladder/bowel.
I started on ropinarole which initially worked but augmentation set in, then put on the patches, which were useless, and now on pramepexole which are keeping my rls under control.
Please please insist on seeing a neurologist, one who specialises in movement disorders, as at last, somebody knew what I was talking about