Seeing things.: I think I am going mad... - Restless Legs Syn...

Restless Legs Syndrome

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Seeing things.

restless1973 profile image
9 Replies

I think I am going mad. I keep seeing things out the corner of my eye, which seem to vanish when I turn my head. Could it be my meds, ropinorole and pregabalin. I'm already bumping into things and now this is really getting me down.

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restless1973
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9 Replies

Maybe discuss this with your doctor, i dont know whether its your meds or not effecting your eyes.   What are you seeing out of the corner of your eye..?

I would put my money on it being the Ropinirole:

drugs.com/sfx/ropinirole-si...

I had very dark almost suicidal thoughts on Mirapexin, these drugs ahve very VERY serious side-effects.

Cfall profile image
Cfall

@cfall reporting: I saw faint image of a horse in my bedroom last night!  (A fleating image  and yes , I have ridden horses.)

    I think it is the ropinorole. And you're right, it is usually out of the corner of my eye. I used to get a lot of them but now that I have stopped taking those pills, I do not see them so often. However it takes about 35 days to get the drug totally out of your body. 

     I've seen images of a party in a neighbors yard at 3 am, saw a village appear out of the pattern on my kitchen counter. It was amazing and I wanted to keep looking. The images are usually fun and not worrisome. However a saw a man in white clothing starting to follow me but as soon as I turned fully around and really looked it was the white Honda parked just outside my Condo I casually noticed 5 seconds earlier.

     Your mind is a great generator of imagination and images. My doctor is sending me off for a neurologist appt and it should be interesting. Don't be scared. Keep tract of the images and I thing you will see they come from your memories. At PT saw a large green exercise ball and then it became  an exercise staff member in a green polo shirt.

   Im glad to be off the pill. Someone read the drug warnings to me and I has sensed many of them. I can be off all RLS drugs as I use the Relaxis pad. It's fantastic. Read some of my posts @cfall or non-medical tx. Now all I need to do is get a standard sleep-wake pattern. 

P.S. I see or sense vague images of people walking past on my left side only.

Good luck. Check out the drug on the web and relaxis.com. They sell them in the US and Canada. They just got the  CE mark in Enland so sales ought to begin there sometime. It takes time to get fully functional on the pad but it is well worth it.

@cfall in Santa Clara, California 

Retren profile image
Retren

To restless1973 some of the medications for RLS manifest in some individuals as hallucinations.Am not certain if reducing dosages would help.Everything seems to be one step forward and another back with this condition.I hope these symptoms subside for you.

TaraJR profile image
TaraJR

You should probably also check with an optician. It could possibly be beginning of Glaucoma or Detached Retina. Both of these require urgent treatment, or you can lose at least part of your eyesight. Sorry if this sounds alarmist, but 2 of my relations have recently had these happen.

Vonnie70 profile image
Vonnie70

I was taking both med's for 6mths last year, I went on to have 2 full seizures (never had before) and was hospitalised, they are still investigating now with scans etc, but I came off the pregabalin immediately as friends had noted my speech was slightly slurred on them and not myself and I was sluggish. I have since stopped the pregabalin (still take the ropinerole) and have felt so much better! I REALLY believe it was the pregabalin that made me so bad and will never take them again! 

restless1973 profile image
restless1973

It is mainly things crawling or running on the floor aswell as people, and it is mainly my left hand side.

Thank you for your replies. 

piglet292 profile image
piglet292

I actually think it's the pregabalin.  I recently withdrew from it because the effects on my visual perception, memory, concentration and motor skills were so appalling.  I fell down the stairs one evening; and I never did that in 40 years of heavy drinking.  I became uncoordinated, muddled, slow to process information and I also got a large abscess on my right shin, which has not properly cleared up since early March, despite two courses of heavy duty antibiotics.  Both my GP and the pain specialist said pregabalin was responsible.  BUT you should not stop taking it suddenly.  See your doctor.

hm523 profile image
hm523

It's the Ropinorole - I had hallucinations on it too. I'd be woken up in the middle of the night to what sounded like furious knocking on the door, which I thought was someone trying to break in. I would also hear cats meowing very loudly, and like you saw things out of the corner of my eyes. Very scary experiences with the drug - once I called by doc to leave a message at 3am whilst bawling my eyes out, they took me off of it right away. Hope you find something that works better with no crazy side effects !

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