I have had RLS for 40 plus years,bef... - Restless Legs Syn...

Restless Legs Syndrome

21,393 members15,059 posts

I have had RLS for 40 plus years,before they had any knowledge of what it was. I would describe it that I wanted to sleep but my motor

Gabby2949 profile image
3 Replies

Sleep but my motor keeps running. I can't tell you how many years I have spent on the floor on my knees with my upper body laying on the chair. Moving my legs up and down, not to mention all the extra weight. With sleep disorders comes eating disorders. Then several years ago came fibermyalga .i have been taking pramipexole .05mg for many years for the RLS with tramadol 50mg when thr fibermyalga pain gets the best of me. The RLS started out once in awhile now it is everyday and sometimes it will kick in at noon. Somedays I'm so tired I can hardly move and then the pain from the fibermylia . The dr has prescribed different drugs for me for depression and it canceled out the restless leg medication if any one has a different remedy I would sure like to hear about it.

Written by
Gabby2949 profile image
Gabby2949
To view profiles and participate in discussions please or .
Read more about...
3 Replies

Hi Gabby and welcome. Sorry you having a rough time its maybe time to change from pramipexole to one of the other meds.You could try ropinerole or neupro patch.When you have been on the dopamine meds for some time they can cause augmentation which means the meds are making your symptoms worse.The best thing to do at this stage is change to another med, Good luck

cumoneileen profile image
cumoneileen

Hi Gaby2949. I to have suffered RLS for 50 years!! of course it didn't have a name then and I was on everything under the sun. when I was younger it was more manageable but as you get older it gets much worse.

I am (at the moment) settled on 6 Ropinirole 250 micirogram tablets. A day. a lot of chopping and changing with times. My GP said 6 is a safe dose, so I take 2 approx. 5pm and 4 as late as possible at night.11pm for me. I also take a co-codamol when necessary which also helps. good luck.

Pinkprincess205 profile image
Pinkprincess205

In fibromyalgia fatigue is a one of the biggest symptoms & also most have RLS as well. It goes in cycles if your not sleeping because of RLS then your fibro will be worse as your not sleeping. I have both n sometimes it's really hard. Your doc should put you on a few different meds to help both conditions.

You may also like...

I am approaching my Dr for first time with what I think I have; RLS - what should I ask?

I have been treated with pain killers for many years with what the Dr says is a back problem, but I...

I have had mild RLS for years but after a hip replacement last July and coming off morphine 3 months ago, my RLS is unbearable.

It is mostly in my left leg and also I have a need to constantly flex the muscles in/around my...

Hi - I have joined on behalf of my Mum and am looking for any advice on what meds/supplements in the UK that might help ease the symtoms?

just had her 3rd night with virtually NO sleep, it's definitely RLS according to the symptom...

I cant take it anymore I want to chop my legs off! I am taking mirapex which helped for a year then I had to keep upping the dose.Now my

and take tablets again.My life is rulef by restless legs people dont understand.I cant go out in the

Anyone try compression stockings

kind of RLS. Have it for many many years (now 70 yrs old). Usually starts around 7:00 pm while...