Good news if your in Texas i guess

newswise.com/articles/uthea...

[Twenty-four7]

Oh for somewhere like that in the UK

[Hidden in reply to Twenty-four7]

couldnt agree more

[Hidden in reply to Twenty-four7]

You are in the Uk? or USA? I forgot.. I'm getting older these days. haha.

[Hidden]

I have lost track of how many times I have had to explain to a doctor here in the UK what Willis-Ekbom disease is.

The usual advice for RLS is "If you have to get up don't put the light on, relax and don't indulge in conversation or any stimulating activity." One even told me to stay in bed and it will pass.

[Hidden in reply to Hidden]

wow i thought my doctor was bad

[Hidden in reply to Hidden]

I had a doctor (hematologist, Oncologist)) tell me exactly the same

thing as you were told. It sounds logical but it's nearly impossible

to remain in the dark or to stay in bed. The only way that it would

be possible to stay in bed is if someone is there with you....haha..

I could not resist.. laughing. =)

Sometimes when you go to the doctor, they hand you tons of

bruchers and pamphlets, printed off papers.. and they tell

you to go home and read it? Well sometimes it's the best way

to treat the doctor as well.. they can't possibly know the most

about these diseases and syndromes.

Did you ever go into the doctor and ask to have certain tests or

to give them a quick briefing with a sheet of paper from webmd

to use for guidance? I have done that so many times. Just sum

it all up in just a few short sentences so the doctor "gets it" and

then have your most recent lab results to show the doctor and

make sure that you have a list of treatments that you did try..

what worked for awhile, what didn't... and you can wrap that

appointment up in half of the time or less...

NOW who is Mrs. Know it all? haha...

Welcome back on here. We missed you and your funny stuff =)

[Hidden in reply to Hidden]

Wooow, when I read this, I'm soooo glad with my doctor!!!

[Hidden]

Glad i got my doctor too, never had any problem, he knows what RLS is and the treatments. He also listens to me, that is one of the most important things when seeing your doctor, one that listens.

[Bella5]

I'll gladly go to Texas if I was sure that I could get an appointment.

[Hidden in reply to Bella5]

May be worth ringing them Bella

[Hidden]

For our American friends. If you want a good laugh the link is to the UK NHS website page about RLS. I stress, this is the official British National Health Service website.

nhs.uk/Conditions/Restless-...

[Hidden in reply to Hidden]

ha ha twitchy i nearly fell of my chair !!!! lol, so are we cured then i wonder ??

[Tiredparent Restless Leg Syndrome in reply to Hidden]

We (RLS UK) will get in touch with the NHS to update it. I've only briefly looked at it - which bits of it were you referring to? thanks

[Hidden in reply to Tiredparent]

well i just clicked on it again and its working now !!, before when i did it said page not found, strange one ??

[Hidden in reply to Tiredparent]

For starters. "It also causes an unpleasant feeling in the feet, calves and thighs, which is often felt as a crawling or creeping sensation" We wish!

"In severe cases, the condition can be distressing and can disrupt daily activities"

To me the whole thing treats RLS as if it were a minor irritation, not the, literally, life destroying condition it is. I have had an anxiety attack because it got so bad, my wife had to call a doctor out. I have felt close to ending my own life when I can't even sit down and relax and know that when I fall asleep I will wake up in an hour almost screaming with the pains.

I am now on Neuro (Rogigotine) patches and coupled with my own therapies am not suffering too much at the moment.

[Hidden in reply to Hidden]

My cousins the same as you then Twitchy, i thought you meant the fact that the link didnt work, not the description of RLS itself, being thats the case, then yes i would agree with you wholeheartedly, so would cuz

[Tiredparent Restless Leg Syndrome]

I understand now! I suppose that most of us on this forum are at the 'severe' end of the spectrum and would love to have just an 'unpleasant feeling'! In the NHS's defence, I have spoken to various people who get much milder symptoms and don't need medication so I suppose they have to cover that end of the spectrum too. When we contact the NHS to update the info, we will try to make it clear how dreadful the condition can be.

[Hidden in reply to Tiredparent]

and please can you stress that a lot of us get pain with it also, not many doctors accept this