Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Hello everyone, Just wondering, those of you with reflux... how often have you had an endoscopy to check for Barrett's etc? I last had an endoscopy a...

Good morning everyone. I am on 3 ×5mg Nifedipine and still get some Raynaud's in fingers (I am using an electric blanket in the photo as gas in the UK is now...

I have symptoms of Scleroderma like skin tightening, lungs damage,Raynaud's, and difficulty swallowing. However, my blood tests for ANA, ACA, and Scl70 are all...

Hi everyone hope you are all well. I had my first visit to Royal Free Hospital. Thank you all for your suggestions they were so helpful. It was a busy day and...

I was due to be seen at Royal Free in May for my annual appointment. I was informed today it has been cancelled and rescheduled 6 months later in November....

Hi, I have Scleroderma with a handful of other conditions such as Pulmonary Hypertension, ILD, Gord, Raynauds etc. I have been taking Sildenafil and...

Hi, has anyone been successful in claiming I'll health retirement because of severe raynaurds? Work has become more and more of an issue over recent years and...

It seems that most of the drugs used in Scleroderma have severe side-effects. So, which one is the most safest one with minimal side-effects?

Having a bad attack of chilblains on my toes, usually get them on my fingers but none so far this winter. Saw GP today and they thought one toe looked...

Hello, I have had SSc and Raynauds for several years with a range of symptoms including digital ulcers. Just recently I have developed strange patches on my...

I’m on my way to Serbia to the Swiss Medica clinic. I’ll be there for one week receiving a course of stem cell infusions. I know it is a step into the unknown...

Hello, I’m 31 years old and my whole life I’ve had poor circulation purple blotchy legs cold hands and feet the older I’ve become the more obvious it is and...

Has anyone been diagnosed with lichen sclerosis who also has a connective tissue disorder?

HiI recently got diagnosed with Systemic Sclerosis after 20 years of misdiagnosis. As a result I have become extremely resilient as had to be but I don't...

hey Everyone I’ve had scleroderma 6 years now. I previously used to have lip fillers but have not since diagnosis. I really hate how it’s made my lips look...

Hi everyone. Hope you are all well. I have my first appointment at Royal Free Hospital London next month. Is there anything I shld be asking. I have my list of...

Hi Everyone, I was diagnosed with Reynauds in 2020, at the same time they did blood tests and it showed positive for Scleroderma. I’ve been under a...

Hi everyone, I have had Raynaud for a 4-5 years both in the hands and feet. This year it is affecting hands more. Up to a month ago it was diagnosed as...

Hi, does anyone have any recommendations for getting travel insurance? The company I've previously been using has now added a question asking if l've...

Just a quick one, I take an absolute age in the mornings to be able to get going. Like 2 to 3 hours before my body realises it's woken up anybody else get...

HiI was diagnosed with diffuse Scleroderma in 2015 I was on mycophenolate for nearly 5years however it caused alot of repeat infections and prevented healing...

Hello! Thank you to all who responded to my previous post. I have received a letter from my rheumatologist that he has reviewed all of the baseline diagnostic...

Hi, I'm curious...does anyone have any thoughts on immune boosting supplements when we have overactive immune systems? My father sadly passed away in...

Did anyone see on the BBC morning News programme ? a lady from SRUK talking about Raynauds and slight mention off Sclerderma.lets hope it may raise...

I am from India and I am looking for a doctor in India who is already treating Scleroderma patients. If you know anyone from India who has Scleroderma and had...

I have symptoms of Scleroderma like skin hardening and raynaud's. But I also get burning in the eyes. But this burning is not felt all the time. I only get it...

hi Short question has anyone been diagnosed with MDA5 antibody or does anybody have any information about this pls, looks like a rare antibody with a poor...

hello I was wondering if anyone knows if it’s safe to take kalms supplement tablets with scleroderma? I take mycophenalate. I have googled and it doesn’t...

I took a herbal drug called L-Arginine a many years ago back in 2010. After taking the tablets in the afternoon, I went to sleep but I woke up with burning...