Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Hi! The rheumatologist I last saw has sent a vague instruction to my GP recommending that I take nifedipine “in the winter months”, but not specifying...

Good Morning everyone, I am currently experiencing a lot of chest discomfort , wind ,etc due to acid reflux , GERDs and dysmotility. I am currently on...

Hi, I have scleroderma and reynauds and while I am used to having cold hands and feet of late I am very cold all over, even my core. I was wondering if I...

hey all I had my rhemotologist appointment this week after many months of my latest issue swelling in joints knees feet ankles wrists and fingers so full blood...

I received a very high positive (+++) SCL70 which stated scleroderma/systemic sclerosis. GP has referred me to rheumatology which I will likely be waiting...

Hello. I just got diagnosed with Diffused Scleroderma and now my Rheumatologist wanted me to start Mycophenolate. So devastating to hear my diagnosis. I suffer...

hi all, I’m quite new to this & was hoping for some advise. I’m 34 and have been diagnosed almost 4 years now, I’m struggling to come to terms with all the...

hey amazing people This is bit out there but I know someone in the forum normally comes up trumps 🙂. Last week I had an overnight watch from hospital to...

Hi all, during a recent consultation with my vascular consultation, he advised because my Raynaud's is so severe all year round, I can't keep putting myself...

Hello lovely people! I just want to thank everyone who has replied to my first post about me being a newly diagnosed Scleroderma patient. Grateful for all your...

My name is farwa munawwar. I am from pakistan. I am 34 years old and patient of scleroderma since 8 years. I have 3 kids. I entered in uk before 6 month. And...

My mind has gone into overdrive and wondered if anyone had looked into this from a Raynaud's affect point of view? I know it's out there but I'm trying to work...

hi I’ve been prescribed Trental 400 mg ( pentoxyfiline) for firearm pain and hand pain associated with Raynauds. The team who prescribed it have discharged me...

Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca...

Hi, I suffer terribly from coldness, even in the hot months my feet and hands get cold. Constantly cold in the winter months, my skin colour turns purple and...

I was diagnosed recently with Raynaud's disease which can get quite painful, but is manageable. I have GORD and a small hiatus hernia. However I do get...

Has anyone had any type of surgical procedure or injections for Raynaud’s?

Hi all, I was actually on this form under a different user name but for some reason couldn't get access to this group with the old user name. Anyhow, long...

Hi all, I stumbled upon these two AMAZING products for helping to manage my raynauds. I have terrible (secondary) raynauds and still work in an office, so...

Nothing seems to help with cold feet except my heated mat and gloves for my hands.

I have had Reynaud's in my hands for years and which I manage. Since having Covid and 'Covid toes' I have been left with feet that react badly (redness,...

Hope everyone is ok. I am new to this Community. I was diagnosed with Raynaud's in April. I,m managing ok, but it takes a bit of getting used to. I get...