Dr David Tuller examines ethical approval of a CFS paper an interesting read on how the wagons are circled when a threat is perceived.
Ethics: Dr David Tuller examines ethical... - Ramsays Disease
Ethics

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Ian123
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Patients rights abused when most of us volunteer for research projects in good faith that they will improve the situation of fellow patients and not for the self aggrandisement of researchers.
Does make one doubt that the normal rules apply when certain individuals are involved.