Biomarker Rollercoaster : Sharing from... - Ramsays Disease

Ramsays Disease

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Biomarker Rollercoaster

slowmotion profile image
7 Replies

Sharing from friends facebook microbediscovery.org/2017/0...

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slowmotion profile image
slowmotion
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Effort profile image
Effort

Found one of the more telling comments from Julie Rehmeyer "Science is hard. It’s really, really hard — even in the best of circumstances, without the huge political problems facing ME/CFS" that politics has enabled medical neglect of a patient community is undoubtedly a factor any historian will have several chapters explaining the who why and where of.

Jonesbones profile image
Jonesbones

Caution after hanging hope with so many cures or breakthroughs is wise counsel it's heartwarming seeing progress in the right direction just the same.

readerlist profile image
readerlist

Cautious optimism for differentiating phenotypes ncbi.nlm.nih.gov/pubmed/283...

Halflife profile image
Halflife in reply to readerlist

Stormer of an article by Cort simmaronresearch.com/2017/0...

Ian123 profile image
Ian123

One more for the collection utoronto.ca/news/u-t-study-...

Fire-brand profile image
Fire-brand

Define biomarker drive.google.com/file/d/0B6...

budgiefriend profile image
budgiefriend

Note: So sorry and embarrassed. I just realised I've posted this in a news article section here. If somebody in charge can move it to the right place, I will be grateful. Otherwise, when I manage to wake up properly and get onto my laptop I will copy and delete and repost in a better area of the forum.

Hi, all,

I haven't been here much at all in the past several months. I am glad to see this forum is still active and very intelligently run, with participants so kind and reasonable and respectful. I appreciate the articles you post, as despite subscribing to most of the best websites and ME news sources in my email, there are still some good things I miss or forget. Forgetting happens a lot. I have a low threshold for digesting anything dense with info or terminology I don't understand.

I just want to say thanks for this group, which always feels comfortable and useful amidst the fog and overwhelming suffering of so many shared chronic illness forums' populations online. Fellow travellers are so helpful, and I feel bad for my long absences when I could maybe have been more of a help to others.

I do come and read posts periodically, but have needed a break from social media for several months and dropped this also, for the most part, along with Facebook and Twitter. I don't feel they are comparable, but was just overwhelmed. Anybody else having a similar dilemma?

I am glad to hear replies and will try to do better.

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Info from the ME Association about the New Social Care Act

http://www.meassociation.org.uk/2015/04/new-social-care-act-comes-into-force-today-and-we-have-a-lea