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[Dunnlyn]

As medical students continue without education on this area altering public perception

remains static trusting medical professionals find nothing therefore there is nothing in an area beyond their teachers experience.

[Ian123]

Shameful treatment by the NHS needs bringing into the twenty first century.

[KMC442]

Much the same as my own experience.

[bulletheblue]

Emotionally challenging knowing the realities faced.

[Jonesbones in reply to bulletheblue]

Voices From The Shadows one more challenging report released 2011

[CheshireKatz]

Vital there is support from family and friends as they find a way of coping with this debilitating poorly understood illness affecting their loved ones. Impact is greater than 250,000 daily lives shattered when a family member suffers with no clear indication from the doctors of best practice a feeling of helplessness from the family multiplies stress.

[Babylon5]

The last major disease that cannot be defined.