Forward

[BagEnd]

Minutes of meeting attended by Dr Martin McShane, Director of Long Term Conditions, NHS England

forward-me.org.uk/15th%20Ju...

As ever members of this communities views are most welcome.

[ringading]

NHS England are asking why NICE guidance change should be considered a priority over a multitude of long term conditions. Litigation concerning harmful GET treatment a suggestion for attracting attention - evidence workwellfoundation.org/wp-c...

along with IOM label "Exertion Intolerance"

[Ian123 in reply to ringading]

A legal challenge in 1992 was still concerning the High Court with the question of physical or psychiatric illness meactionuk.org.uk/ME_Judgme...

PACE trials of 2011 were intended as proof of effectiveness for the 2007 NICE guidelines, making a legal challenge difficult as the largest research on the subject.

A test case with the new research is certainly an interesting idea.

[carch520]

NICE guidance on a large number of conditions was unlikely to be reviewed for a long time shortens as talk to the hand fool.

[Effort]

Sight of Dr McShanes letter to NICE eagerly awaited after prevarication.

[Jonesbones in reply to Effort]

Default position appears say no then give a little when pressured.

[bulletheblue]

Taking any reasonable and constructive contributions to our deliberations from any individual is patient participation doctors have some catching up work modernising.

[Seascape]

All the charity s singing from the same songsheet is positive.

[Theresa60]

Collaborating on research and lobbying a brighter future.

[budgiefriend]

"Consultations should start by saying to the patient “Tell me what matters most to you”. There was a lot of evidence to show that the person best qualified to determine management of the patient’s condition was the patient."

AND

"... if you want to change behaviour in patients you first have to achieve change of behaviour in the healthcare professionals."

It is wonderful to read such statements. Now let's see the changes!