Forgotten Plague: Raise awareness with a... - Ramsays Disease

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Forgotten Plague

Stormchaser profile image
8 Replies

Raise awareness with a screening

youtube.com/watch?v=rZ-b1om...

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Stormchaser profile image
Stormchaser
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8 Replies
Ian123 profile image
Ian123

Raising awareness a much needed change forgottenplague.com/

kel-b profile image
kel-b in reply to Ian123

None UK

Theresa60 profile image
Theresa60

Powerful title nothing gained by shyness I suppose.

Arianne profile image
Arianne

A dvd at home 69 minuets and going out is a no.

Effort profile image
Effort in reply to Arianne

Watching at home with rest time as needed my choice.

Arianne profile image
Arianne in reply to Effort

Had a message a dvd will become available in time

budgiefriend profile image
budgiefriend

The official facebook page for Forgotten Plague says they will be announcing UK screenings soon.

I feel a bit frustrated about this, as it is desperately needed in my area where it seems there are no NHS services for this illness except the kind backed by the wrong people (CBT/GET) BUT I don't even go out of my home and don't know any other sufferers. I sure hope someone organises something in this area.

I am really needing some referral to a specialist who understands this illness and POTS and testing that can help me, but my GP seems to think that is unnecessary. I keep seeing things happening and available in the North of England. Wish so much I were near Julia Newton's clinic, etc.

Arianne profile image
Arianne

A must see huffingtonpost.com/bill-joh...