SEID

[Halflife]

Unintended Consequences of not Specifying Exclusionary Illnesses for Systemic Exertion Intolerance Disease cfstreatment.blogspot.co.uk...

[RockRose]

Thanks Halflife, so true...and Jason demonstrates wiser (and scientific) approach...Isn't it curious how with all our collective wisdom and knowledge this kind of error still happens...resulting in an over-broad brush stroke and unecessary confusion. Thanks to to those who take care to notice and to you for sharing.

[Mistymooring]

CDC exclusion shuts out some with CFS then SEID puts some in without CFS so exclusion has had its chance for 20 years sending sufferers on a trail of physicians telling them have one cant have both.

Exclude for mental health saves health insurance paying bills have an Elephant in the room if having life ripped up in front of you makes you depressed.

Clinical diagnosis has and always will need a good case workup from a good physician what Jason is looking out for is heterogeneous research groups slit without a biomarker.

[Ian123]

A certainty that a tried and tested method would have more science but that did not stop the widely used for research purposes Fukuda criteria taking on a diagnostic role without been tried and tested for a new purpose, carrying on a tradition of ignoring scientific evolution of a theory has ever been the way evidence suggests.

Carrying on the argument of what should be done is re-organizing the deck chairs on the Titanic, the time for action is long overdue and using an updated Canadian Consensus Criteria had greater patient support but whatever do something has to be a way forward.

[RockRose in reply to Ian123]

Hear, hear, Ian...both to the do something and also (by inference) to wise methods that actively take into account scientific evolution...We would like this in our lifetimes and soonest...

[Ian123 in reply to RockRose]

Yes soonest hits the nail squarely on the head.

[Peter-J]

Lenny Jason was needed, but unfortunately he removed himself from participating in the process.

The Outsider: Jason Takes Aim at the IOM Report – Again cortjohnson.org/blog/2015/0...

[RockRose in reply to Peter-J]

Yes, feels regrettable...because I think his methods could have really helped...let's trust maybe something coming out of the NIH pathways to prevention perhaps...and thanks for sharing Peter-J