An Education project from Holland that contains information that can help patients/families and carers
improve understanding of a very complex illness.
Education Project: An Education project from... - Ramsays Disease
Education Project
Written by
BagEnd
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14 Replies
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Problem with the link I have opened it in another tab after highlighting the link,
I had watched some of these videos previously the irony of watching some British experts on a Dutch education project is not lost on me, where is the equivalent from the NHS and does this say more about treatment in the UK than a video clip could with a deafening silence.
wetenschapvoorpatienten.nl/... choose from the list English in brackets
Watched about viruses thanks for this.
Loads of info there - thanks for a valuable resource.
Heart guy gets straight on track like that a lot.
Thanks picking out some solid information Leonard Jason one of the good guys.
Figured this educational offerutah.org/OFFER%20Insig... move it on if Im wrong
Impact of missing out on education itv.com/goodmorningbritain/...
Hi BagEnd, I hope you are doing the best as humanly possible in the current weeks...
And thanks for such incredible information - what a thorough project and I feel such respect for that Doctor !
I can learn so much from these videos, to help cultivate a deeper understanding of the condition (both for myself and others).
My main wish is to thank you !
This bit 'below' is because I'd love to express some things - however only read-on if you have the bandwidth. rather than to call on your precious energy.
Best wishes
Rock Rose 
I've come across some lovely , willing and empathetic Drs here in the UK, yet as Ian asks, where is the equivalent in the UK of this?
Do we have any clues if anything like this exists? Or could we be referred to a Dutch polyclinic, I wonder? (...in my dreams, beyond realities and funding issues !)
So far, I haven't come across a Doctor with anything like that level of serious specialist research and understanding...
I did have a GP with enough curiosity to ask me how I made a 'first recovery (to around 85% functioning)' which lasted 7 years...keen to understand, in order to help other patients, which was a wonderful approach.
Now I'm 'back at the rockface...and discovering that some previous approaches still help, though this time, seemingly more in a preventative sense (.... 'preventing from further deterioration') rather than (so far) 'helping healing' - though I'm keen, willing, open and motivated to explore *whatever* helps !
So perhaps that 'relative 'recovery' was a natural remission (supported by certain environmental/life-style factors at the time). I wonder if anyone else experiences/d something like that...
First can I apologise for delaying a response there were circumstances beyond control. Rehydrated now the contents of the drip must contain a special mixture easing most symptoms - BagEnd Coctail.
This site was established for assisting and supporting it's members, achieving any success depends on our members without their contribution the community would not function.
Thanks so much BagEnd
I was wondering how you are feeling, in truth...
Really heartened if hydrated now and BagEnd Cocktail easing things...
I'm so thankful for this site and the and sharing from our members.
I also feel the quiet presence of other members, who may be waiting for an energy window to ask questions or share experience.
You know, BagEnd, in just 1 week of being here, I'm learning so much which helps put-together more pieces of the puzzle.
For me, this will help guide next steps and conversations with the clinical team, DWP, as well as social care & health assessment team (...after 26 years and counting....)
Thanks again and hoping that the cocktail keeps-on doing real good.