My husband has psp, he was diagnosed 6 months ago but started with the symptoms a couple of years ago. He keeps complaining about being really dizzy, and I wondered if any of you have had dizziness and if you can take anything (medication) to help with this? Any help would be appreciated as were totally new to all of this.
Many thanks
hi i had bad probs wiht labyrinthitisi (innner ear probs) b4 getting THE PSP diagnosis
it meant i ha dot sayh ihn bed for a few days - hte room just spun around
but since giving up swigmmign (i coudl ngo longe rco -ordinate hand s and legs) and going ot hte pool for fear of fallighn in th eshowers i have not had the problem
btu i stil l hav e vertigo probs and feel diszzy at times
r u i the uk? R u seeign yoru consultnat soon again? he might have an answer.
there are meds fo rfdiziness sbut you need otcheck wih your gp or neuro
lol JILL
its normal get dizzy if he have not got balance...in PSP balance doesn,t exist cause persons falls all time, normaly foward and fast, my father was dizzy all time before diagnosed and now doctors says me that this was normal cause he has balance disorders....sorry but there are no cure for that...its terrible...my father now doesn´t walk alone anymore i have to be with him all time for all things. his legs now are spaguettis and walk very bad and all start with dizzy episodies
hugs from spain
I am dizzy. I have to lie down to prevent it and I spend all day lieing down. I was diagnosed with PSP in MARCH OF 2011. i DON'T KNOW OF A DRUG THAT WILL PREVENT IT.
Thank you for your info,
My mum, Margaret is 84 , has suffered dizziness for approx 3 years. We think she has had PSP for at least 4 years but only got diagnosis six months ago just after she went into a care home. Her condition has slowly but steadily worsened...speech all but gone, no interest in TV, sensitive to light, cannot blink much, doesn't sleep well. Spends much of the day lying on bed due to the constant extreme dizziness ....very distressing for her and us to witness. No help available I'm sorry to say. Just another terrible symptom of this disease.
She is losing weight due to the fact that she manages to get into her bathroom and flushes most of her food away...don't know why...the staff don't have the time available to sit with her to encourage her to eat more. She has an Ensure supplement once a day but I worry that it isn't enough. She has become so fragile and pitiful.
Just wish it was over for her......the is no quality of life now.
She gets no professional help outside of the care home at all in spite of past promises.
Hello there,
My mom's first sort of symptoms of PSP included tiredness, double vision and feeling really dizzy. She said at first the dizziness would be early in the mornings and then she would be ok. Eventually the dizziness times lasted longer and longer. We tried seasickness pills, bands round the wrists etc but couldn't improve this. They say that PSP patients fall backwards but Mom fell sideways and forwards too. It was as if she couldn't put her arms out to stop herself in time. Mom could walk ok with assistance from me but somehow would lean more and more forward until she was nearly falling forwards. She was ok in bed, she said that's where she felt safest, and the dizziness wasn't so bad.
Jane
x
Hi, I'm new here. I have the same problem sence this first started with me. I had Boughts of a Dizzy or more accurately drunken, or Buzzed sensatin, Started comming and going at first then never going away, and now some days very intense.I don't know why describing this is so very confuseing with the Neurologists or any doctor for that matter, because describing what is actually happening is very crutial. Dizzy the feeling of being drunk or buzzed,and off balance or Vertigo actually spinning or movement with no balance, is a real peoblem for the Docotors to distinguish. So accuracy is a big factor, because in my case They always go with a Vestibular condition and stuck with that theroy for about 3 years now. But all testing showes no vestibular Desiease that would account for all the other symptoms.But proves that a Neurological condition, that is attacking the Vestibular and related parts of the brain that work with the vestibular system. I.E. Visual , eye control, Movement and motion,and Audiatorial parts as well. Sounds and loud sound stimulie can affect the balance as well. All are connected in some way, form and manner.
As I understand it, Vertigo is and can be apart of PSP , CBD , MSA , But also is associated with many other conditions as well. and every time I told them the feeling of being dizzy The Doc's always assumed it was the spinning sensation of Vertigo, so a Vestibular Desiese was always checked for. and a lot of other symptoms, that I also have, with these other conditions PSP,CBD,MSA, can also follow along with Vestibular Dieseases as well as with other Neurological Conditions too. But thanks to Testing and Trials Most symptoms can be distinguished to differentiate between the Many conditions that are out here.But unfortunately , and I hate that word, Many Doctors are Not very Familuar with The PSP, CBD,MSA, or A-typical types of Parkinsosns dissorders and have a tendency to just Diagnoss as Parkinsons with out going any further to distinguish if it Is a higher form of Parkinsons. It's has to be very confuseing for the Doc's as well. But I feel a good Doctor will Check every aspect to make sure of the right diagnossis.And unfortunatly Most don't and just Diagnoss Parkinsons and dont feel the need to go any further. Or a Missdiagnossis is the result, and that really Pi @ # $ % me off. Because the A-typical types are Life Shortining and very dibilitating conditions.
In my case I have found myself being my own advocate and to some degree my own doctor because of this condition not being Officaily or difinitvely diagnossed. and because of the lack of treatment or clinical answers for my symptoms, I have been told that I have had almost every test done and have only a few bad test results that don't explain my condition very clearly or difinitivly and until something shows up with the M.R.I.'s A diagnossis cannot be given, and eventually it will, they say. But my biggest worrie is , What state of mind and condition will I be in before it dose show up ? Will I have to die before they are satisfied that this is PSP ? Could this have had been slowed down or controlled to some degree if they would have tried any kind of treatment what so ever ? Would I have had some kind of reliefe from these symptoms for better quality of life ? I have nothing but time and have found some answers to these questions and have done alot of Checking and research and studied alot of A-typical Parkinsons dissorders, Symptoms, Diagnostic Criteria ,Trials and Treatment studies, Life expectancies, with and without treatment, and Symposieums about the A-typical Parkinson dissorders. And every thing that has been going On with me Symptom wise as well as with some of the test results that I have had, Followes every bit of the NINDS criteriea for probable if not deffinate PSP. and I have No exclusion Criteria what's so ever. If these standards are what these Neurologist are supposed to follow, why is it that they don't follow this well issued and pubilcated form of standards set forth, for them , to help us as the Patients?
Why set guide lines and standards and publish them if they don't follow them? Who are they for then if they don't have to follow them ? The Patients are like Puppets on a string, most are unawhare of whats going on with them, they just know Something is terribly wrong and have an overwhelming desire to be normal again.Unaware of what is supposed to be a standard of practice, set forth for thier doctor's to help aid them, and educate them, even help give them the right diagnossis and course of treatment for thier condition. So we just keep getting srtung along with the wrong diagnossis and treatment. Most have great faith in thier doctors that they are competent in what they are doing and the treatment they are reciving from them is right. But who set these standards in the first place? Who regulates what standard is supposed to be followed or even enforces what is supposed to be followed?. and truely can this standard really be enforced or regulated? No, not really, it's a matter of choice by the Doctor, Free will... So dose the patient, in some instances, but these conditions impeed the brain and thought processes , So Some have no say with anything that is going on with them or thier treatment, Thier rights and credibility gone, once labeled as imparred.....and still I admire and I am impressed with these people who struggle every day struggles in thier lifes with thier condition, with still hope that some day, someone will listen, and that, just maybe, there is a cure out there.But keep fighting to survive, no matter how bad it gets for them.
Sorry this is so long, And yes Vented a little, but It's something I needed to get off my chest so to speek. I could be wrong with where this had concluded but from what I have gone through so far....and My battle has just begun....these are my thoughts and have experienced first had... So I have and am living it myself......Kind of a wired way to introduce myself....Sorry if this offends anyone...
Thank you for your reply to our question of dizziness. My husband has the same problem explaining how he feels. The doctor asks him is the room going round or is he swaying etc. your explanation of being drunk and buzzed or fuzzed is a good explanation of how he feels. My husband has been like this for over two years and has just been diagnosed with psp. But we are told there is no medication that he can take to get rid of dizziness. The only respite he get s is to go to bed and lie on his left hand side.my husband says to you if you hear of anything to stop dizziness please let him know. We wish you all the best.
I am dizzy e each day n it's getting worse, I was told there is can do" I was diagnosed several months back. What medicine is there?
My husband had some wax buildup inside of his ear canal and when that was cleared up he felt less dizzy. Still dizzy, but not as bad as before. Maybe you could ask your doctor to check your ears if they haven’t done that already?
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