Sir Sebastion Coe

[sue1002]

Read in the Birmingham Evening Mail that Seb is trying to raise awareness of this terrible illness because his MUM who died in 2005 had the disease. If he can help us in any way with his contacts we may have a bit more help & understanding so Thank you Seb Coe for trying.

[Hidden]

Yes I think I saw it in the PSP newsletter-he is doing a talk about his life from starting his running, through his mum's illness and up to the current day as far as I could see. It would be great if we could see a some of it in the PSP newsletter or something as the ticket prices are £2,500 each -not for us lowly PSP relatives and sufferers. He is our representative and its great he is actively doing something. Just wish we could hear what he has to say too.

[jillannf6]

i agree

he is a high flyign individual and hte ticke tprices r ridiculous apart form raisnig good money 4 rPSP

lol JIl

[hazelb]

As one of PSPA 's Vice Presidents, he has been raising awareness for a long time but obviously at those prices, there will hopefully be a lot of money raised as well.

Take care & keep smiling. Love Hazel B xx