My dad made ??one year suffering from PSP

[ppaulojorge]

We live in Portugal and I wonder if I can submit my father to new medicines for this disease here in Portugal such as DAVUNETIDE. Thank you.

[ineke]

Did not know DAVENUTIDES (the only medecine) was already on the market, Is it only in Portugal?? I have PSP and live in Thailand! That is maybe I did not Know, As my sons both go to Europe end of September I am really interetsed in this drug. iravenna

[ppaulojorge in reply to ineke]

Hello iravenna,

sorry but I should have explained better. This drug is not on the market here in Portugal and I know, anywhere in the world (i think is still in testing phase). What I wanted was my father undergo testing with this drug to have any hope of improvement for him. My thanks and wish a speedy recovery for you.

[jimandsharynp in reply to ppaulojorge]

My understanding is that the "test" group has been established and is not accepting any additional PSP patients at this time. We just have to await the results and be hopeful.

Jimbo

[kpsmail]

There isno medicine fur PSPas far as alopathy is concerned

[AnabelaQ]

Hello I live in Portugal too, as I know this medicine is still on trial, and only in the USA and UK. At present there is no medicine for the PSP. My mother was diagnosed in May 2010, and she is taking Stalevo (medicine for Parkinson's disease) to help to improve her stiffness. Wish you all the best.

PS:Sorry for any mistake my English is not good enough.

[jimandsharynp in reply to AnabelaQ]

My wife is taking Stalevo. She had been on it, then totallly off it, then back on at a higher dose. We noticed no big change or even small on it. However, we are staying on it because there are no side effects and if there is even the slightest improvement we want it even if we can't see it as a huge impact. She is taking two tablets three times a day.

Jimbo