becoming nervous and wary of him. He is not any any medication.
PLEASE has anyone got a suggestions or solutions?
dorothy-thompson
becoming nervous and wary of him. He is not any any medication.
PLEASE has anyone got a suggestions or solutions?
dorothy-thompson
Hello dorothy-thompson
Do not suffer by yourself, it may be an idea to see your GP and ask for help in this matter, he/she may want to seek advice from the consultant in charge of your husbands care for best treatment.
No carer should have to put up with verbal or physical abuse. It is not part of the role.
Regards
Brenda
I agree you should not have to put up with this alone. It is highly likely that it is the PSP that is causing allot of the aggression and psychological changes so it is not his fault. My mum is on anti-depressants and low dose 2mg valium three times a day, aswell as a sleeping tablet to help with sleep. We found the low dose valium probably the best because it reduced anxiety, and not totally convinced the anti-depressants help allot but its difficult to stop medication once you start them because of withdrawal symptoms. Good luck and get in touch with your GP/neurologist etc.
Hello Barbren
Thank you for this. We have recently moved and so have to register with another GP which we are doing next week. Our previous GP was sympathetic but not much else, our previous local authority were not very helpful either. I am hoping for better things with a new authoriity.
We have no consultant. From the moment my husband was diagnosed in October 2010 we were told "the NHS cannot do anything for you".
dorothy-thompson
hi dorothy
and your husabnd too
the physical agression is v difficult ot bear - i occasionally striek out a tmy partner in frustration etc
the verbal abuse? is htis ok with you?
i think you need some medical jhelep but woudl yoru husband accept it??
from wha tyou hav esaid in the pas t he does not wan t meds ot calm him down
i reallyh cannot gi ve u an answer btu le tus knwo wha tyour gp or consu;ltant say
lol JIll
thanks fo ryour comment s on ,myh p ostb y the way
Hi Dorothy....register with a GP asap & ask for a referral to a Neurologist in your new area. Then ask for a referral to District nurses, Neurological team ( if there is one in your area ), Social Services...in fact everyone. If you are in a new area you need to be in their system as soon as possible. I would also suggest you ring the PSP nurse for advice....they are wonderful & will help in anyway they can. Kat Haines ( NW nurse ) in particular is brilliant. She was a tremendous support for me.
Take care & try to keep smiling. Love Hazel B xx
hi mate i go to blue care it costs us 25 dollars a week for balance and speech not sure if you have a balance group or speech therapist or even blue care in your area but they have been real good to me just seeing someone might straiten your husband out by talking to someone thats not connected to him i think this sydrome is enough to put up with for the carer without getting abused for it as well cheer up mate better days ahead chin up
peter jones australia
Hi peterjones and everyone else.
Funnily enough we have just got in touch with bluebird care in the uk for what they call "good old fashioned service", don't know if its the same as you're bluebird but we'll see. At the very least it will give me time off and both of us "time out"
thanks for your support
dorothy-thompson
Hi Dorothy -you may want to look into some anti-anxiety medication. I know of other PSP suffers that have this aggression. It should pass but not at all ok for you.
hi my dad is verbally abusive to family members and he has now stretched that to strangers i disscussed this with the ocupational therapist as i was concerned this may start to affect granchildren. we know dad doesent meen it and it is part of the illness. my concern would be if dad had happended to be out alone and abusive to people they could have thought he was drunk and one day a man actually was abusive back to my dad a man a good 15 years younger than my dad and he threatened to punch him. i had to tell the man my dad didnt mean it and the man looked rather embarrassed. the OT told me this could extend to pysicall abuse and to keep our eye on it and i suppose we will have to llook at drugs to calm his anxiety when the time comes but at the minute hes new to the illness and frustrated so we just let it go
dorothy-thompson
thank you all for you help and suggestions, we now have a new gp and are waiting to be linked in to all the services.
I have another question, domestic now. We are installing a new shower room and want to get anti-slip or non-slip flooring - I have trailed the internet, very confusing, has anyone got any advice, our builder is leaving it up to me because of colour etc, all suggestions gratefully received.