Help raise awareness of PSP & CBD on Rare Diseases Day

[HelenPSPA]

Help raise awareness of PSP & CBD on Rare Diseases Day, 28 February 2021.

Rare Disease UK is looking for people to share their experience of a rare disease, such as PSP & CBD for a video they are creating for the annual awareness day.

Whether you are living with the condition yourself, are a family member, a carer or a friend, they want to hear from you.

To take part, film your video using your mobile phone (film holding your phone horizontally) stating who you are, whether you have PSP or CBD, and some of the highs and lows of your experience. Then email it to [e-mail] by 13 January.

raredisease.org.uk/news-eve...

[MomsPoet]

Hi Helen. I hope to be able to help with this campaign; my mother has PSP. I was late to enter the Rare Diseases Tshirt design contest but I will try to find some time to get a video ready in a couple days. TY!

[HelenPSPA Administrator PSPA in reply to MomsPoet]

Thank you that would be great if you do have time