If a person has PSP, do they have mini seizures through this illness? If so, how do these seizures look? My husband was shaking and non-responsive through the weekend but seemed to get better today.
Seizures& PSP: If a person has PSP, do they... - PSP Association
Seizures& PSP
Yes, seizures can happen. They may go on for a while then stop. Let his doctor or nurse know what is happening.
I would also suggest getting home hospice involved. Tell his doctor you want him evaluated at home by hospice. I think he would qualify.
Thank you for your reply. This is something that is not on the information sheets.
You may be told hospice is only for the last 6 months of life. That isn’t true.
Hospice eligibility requirements for neurological conditions:
Structural/functional impairments
Impaired mental function
Impaired sensory function and pain
Impaired neuromusculoskeletal and movement functions
Impaired communication
Impaired mobility
Self-care deficit
Activity limitations
Comorbid and secondary conditions also contribute to a terminal prognosis.
I’m sorry that your husband is going through this. I agree with what Jeff mentioned. His doctor may be able to provide a medication that could help prevent seizures from happening. I also like the idea of getting hospice involved.
My husband has had a few seizures but they have been short in duration and I know that one was caused from a medication withdrawal. Has anything changed recently with your husband’s meds or is he on anything that poses side effects?
I hope that you can get it sorted and please let us know how you’re both getting on.
❤️ SewBears
I don’t know if this is the same, but my dad has what I think are seizures where he jerks backwards all of a sudden (sitting and standing) and freezes / trembles for a while after. Is that similar to your husband?
Moojuice my husband was admitted to hospital on boxing day he was in hospital for four days they had to wait for the neuro to get back on duty he said it was a psp episode was shaking from head to foot and out of it for two days took a couple of weeks to get back to normal x
I am so sorry for you and your husband.
Thank you