Nighttime meds?: If your spouse is sawing... - PSP Association

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Nighttime meds?

SewBears profile image
13 Replies

If your spouse is sawing logs, do you wake them to administer their good night medication?

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SewBears profile image
SewBears
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13 Replies
kenh1 profile image
kenh1

One of the advantages of being on a peg feed is that you can give them the med's whilst they saw logs to their heart's content.

If it is feed by mouth I suppose it depends what the meds are for. If it is to help them sleep maybe they don't need them.

When my wife used to snore I used to breathe a sigh of relief that she was sleeping well and still alive.

Now the only person sawing logs is me and so far I haven't woken myself up.

Best wishes. Ken.

in reply to kenh1

I used to have a dog that that snored just like me. Hubby would say, "ls that you or the dog?" I had always heard leave sleeping dogs lie... l think the same is true of people... depending what the meds are l would not disrupt sleep because at times it is impossible to go back to sleep.

Sending hugs... Granni B

SewBears profile image
SewBears in reply to kenh1

The meds are given orally. He takes Clonazepam for tremors and blood pressure medication. Along with over the counter stool softener(s). He woke himself up last night and I took the brief opportunity to give him his pills. Thankfully he went right back to sleep. I think if he misses the blood pressure medication that he will wake with a horrible headache, so it’s best that he not skip it. I really do hate to wake him though and it’s happening more and more these days so that’s why I asked what other people do.

Thank you for your replies. If he hadn’t awakened I think I would have let sleeping dogs lie. Cute answer!

Kevin_1 profile image
Kevin_1 in reply to SewBears

Hi

I suspect it is best to wake him and give him the clonazepam. Firstly clonazepam does create a dependency. (However apparently much less so for people with PSP) Second the clonazepam helps folk with PSP to sleep. Poor sleep is a common problem with PSP.

If you wait ten minutes does he stop snoring? I think that is the time he is in light sleep and if you wake him it will disturb his sleep less than when in deep sleep.

So hard to be sure.

Best to you

Kevin

Dadshelper profile image
Dadshelper

Since one is a blood pressure med I'd have to decide if the person is just in a deep nap and will wake soon or if it's an out for the night sleep. If just a nap type sleep, wait till the person wakes. If falling asleep before night time meds becomes a regular habit then I'd adjust the time schedule. I personally see no benefit to waking just to give meds, as Granni B said "let sleeping dogs lie".

Ron

SewBears profile image
SewBears in reply to Dadshelper

He’s managed to turn naps into full blown nighttime sleep. I adjusted the schedule from 9PM to 8PM because he was falling asleep before 9. Now he’s falling asleep before 8. I guess I need to start giving them to him before 8 now. Luckily, he’s been sleeping through the night and wakes around 6 so I am getting enough sleep myself. Yeah!

Railfan profile image
Railfan in reply to SewBears

I would always ask the doc before deciding to skip a dose. However, I read the papers that come with my meds and most say what to do if you miss a dose. I would say that sleeping would count as missing a dose.

SewBears profile image
SewBears in reply to Railfan

Makes sense. Thanks! I’m going to try not to skip any at all. Luckily he woke last night, just long enough for me to shout at him to swallow. Now I’m thinking that he wasn’t really awake. Kind of scary!

Railfan profile image
Railfan in reply to SewBears

I wake briefly as I turn. It even happens with OTC sleep aids.

Servena03 profile image
Servena03 in reply to SewBears

My John just a year ago, was ready for sleep at 9.30, gradually fatigue took over quicker and quicker, he now goes to bed at 6.30 pm and can sleep to 8.00am, I don't wake him for meds, but changed the dosage to suit his needs, he only has 3doses of paracetamol when he could have four, and give his Oxy pain killer when needed, He does occasionally wake in the night and that means he has a problem, either pain, commode or head voices, which is taken over a lot at the moment hoping it's caused by his blocked ears, being syringed next Friday, I have been writing down the snippets of word sentences he has been hearing, now on page three, has any other PSP suffered these voices too?

It is so great to get a good night's sleep.

Good luck, Jean xxx

SewBears profile image
SewBears in reply to Servena03

I don’t know if he is hearing things or not because he mumbles when he talks and he doesn’t always make sense. He mumbles in his sleep too and sometimes he shouts out in pain but he is in a deep sleep. It does seem like he is falling asleep earlier and earlier. He takes C/L 3 times a day but not at night. The C/L helps with his stiffness. I honestly don’t know what to think anymore. Just going with the flow 🤷‍♀️

SewBears profile image
SewBears in reply to Servena03

Hi Jean,

Sorry, I also meant to say that I think the voices are part of what’s going on inside of the brain and not their actual hearing. My sister has begged me to get my husband hearing aides but I believe it’s a comprehension problem and not a hearing issue. As far as I know my husband doesn’t hear voices that aren’t there. I wonder if your husband is actually talking in his sleep? 🤷‍♀️

Servena03 profile image
Servena03 in reply to SewBears

Thank you, I agree we don't know what or when is next, just try to handle whatever it throws at us, somehow we do cope and I know I wouldn't want to be in his shoes.

Bless us all Jean 😍

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