PSP and Hallucination: What should i expect?

[vikasmahajan24]

My dad was diagnosed with PSP four years back in India. He is currently in USA with me(he visits for 6 months every year). He lives with me, with my mom and wife also helping him out.

My dad is in hospital with lots of hallucinations. For last weeks, the falls increased, hallucinations increased. On Saturday night, he did not sleep for a minute. His hands were constantly moving in air as though he is writing something and legs as well. In between he will go for urination and fell. He has fallen many times in last two weeks which is more than usual.

I took him to ER and there is no UTI, there is no several broken parts(CT Scan, Xrays) etc. Today they will do MRI. In hospital, he has a sitter but they were not able to control him in the night and ultimately gave ativan after trying seqouel. His eyes are closed but still no respite from moving hands and legs. This has been going on for almost last 36 hours.

What should i expect?

Is he going to feel better?

What things should we try?

[Hidden]

Everyone experiences PSP differently. Hopefully the symptoms will subside on their own or with medication. It is very difficult to know what will happen.

[Dadshelper]

It sounds like you and the medical staff are doing what you can. It is so hard to say what will happen next. All you can do is try to keep him safe and comfortable while the medical team tries to see if there is any other cause besides the PSP.

Ron

[AnaBri]

Have they assigned your dad a head neurologist? PSP is a very peculiar decease. It's a type of parkinson and the hands and legs movement is common with Parkinson's patients, the legs particularly for some patients. Hallucinations can be frecuent at some time, there are drugs that helps to prevent them. What you need to find is the right combination for your father. But you need to have a specialist that understands PSP, symptoms as a whole and can give you thw right advices and your father the best options.

Ask to talk with his neurologist and get him to explain to you what you can do. Our patients can have lots of years with us with the right care and treatment. The problem with those falls is he can end up paralized before it's time, so you need to be very careful.

I'm sorry, but it doesn't sound as if they truly know how to treat him at that hospital.

They also need to advise you if he's already at a time where you can no longer take care of him at home, it's not easy to take that decision, but it's the safest for him if the time has come.

Keep going, the best way to take what happens is with knowledge.

Best of wishes for you and your father.