A crazy question...: Ian has woken up each... - PSP Association

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A crazy question...

JCRy profile image
JCRy
6 Replies

Ian has woken up each day for the last fortnight complaining of back and stomach ache. It passes after a couple of hours usually. His mobility is generally poor now. Could it be the new mattress but he thinks it's an internal issue.

Any advice, apart from visiting the docs?

Thanks, Juliet.

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JCRy profile image
JCRy
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6 Replies
raincitygirl profile image
raincitygirl

Hi Juliet,

I notice the professionals guide to CBD to which Denb posted the link, does say 'pain often starts to show up as mobility decreases'.

You are in such an isolated location its probably too difficult to arrange a visiting physiotherapist for activation??....

XX. Anne G.

JCRy profile image
JCRy in reply to raincitygirl

Saw the doc this morning who said if the pain continues, to take him to hospital in the afternoon. At the local A and E now.....waiting!

raincitygirl profile image
raincitygirl in reply to JCRy

Good luck! ❣️

JCRy profile image
JCRy in reply to raincitygirl

After 4 hours and an enema we were sent home....with another couple to administer at home. Glad it was nothing more sinister, but a surprise, as Ian has never suffered from constipation. Guess his inactivity is having repercussions.

Hey ho! Another series of delights ahead. Glad we can laugh about it....At the moment anyway.

Thanks for your support, Anne.x

LuisRodicioRodicio profile image
LuisRodicioRodicio in reply to JCRy

Our experiences:

On our case she has had some episodes of constipation that have been corrected by applying an intensive Mediterranean diet based on fruits and vegetables, abundant liquids (In particular, around 100 c.c. liquid before breakfast) and helped when difficulties by the drug Duphalac (lactulose, an oral osmotic laxative), but on some patients it produces annoying internal gases. As an alternative to Duphalac we are testing "Movicol" which is notably more active and does not produce gases. The problem is to find the right dose per day to achieve a regularity. At this time we are trying around 1.5g in the mornings at breakfast. Higher doses (6g / day, 3g / day) have produced too intense effects.

Yogurts with pieces of plum (at lunch) have been of special help and maintenance. Avoiding lemon juice, chocolate, bananas and rice, helps.

Staying quiet favors constipation. A program of gymnastic exercises, especially walking, favor regularity.

In case of not “open bowels” in 2 or 3 days, it is interesting consider to apply a Micralax cannula (citrate / lauryl sulfoacetate) rectally.

Hoping to be useful.

Hug.

Luis

JCRy profile image
JCRy in reply to LuisRodicioRodicio

What can I say but thank you again, Luis.x

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