Hi, I am new to this blog! I joined to get support from others whose loved ones also suffer from CBD. My MIL has been battling this disease for 5 years now. She is 77 and completely wheel chair bound. Unfortunately she is not able to move at all on her own any longer. She has a live in nurse whom she has connected well with. She has a couple of hoists and pillows that are used to move her. Sadly, She lost her ability to speak but can communicate through a technological device that scans her retina. She types out what she would like to say, then it projects sentences out loud. Thank God for this!
I am amazed my MIL is still able to swallow pills and such...however, her food is puréed to a liquid consistency which she is fed.
This disease is horrible!!! What bravery she exhibits each and every day!