Don't know how to describe ???
It's not the shakes as associated with Parkinson's and it's not tremor.
Barry has had these bolts for a few years but they are increasing.
Is anyone familiar with this ?
Althea ππ
Don't know how to describe ???
It's not the shakes as associated with Parkinson's and it's not tremor.
Barry has had these bolts for a few years but they are increasing.
Is anyone familiar with this ?
Althea ππ
Hi Althea
I have not come across this. Sorry.
I know I would be on to the neurologist though.
Hopefully someone with experience will come back to you.
Is this the sort of thing you are refering to?
tsft.nhs.uk/media/45317/Res...
Hopefully someone informed will get back to you.
Warmly
Kevin
Kevin, thank you for reply. I checked that site and it's not Restless leg Syndrome. I forgot to mention that my husband was diagnosed with PSP a year ago and misdiagnosed several times for 4 years previously.
Althea
No, describe more please. Is it like a seizure? where his whole body is involved? or is it like an alien limb? Sorry I just not familiar , I don't think...
Like a soccer player kicking a ball or a boxer throwing a punch. Except he is lying on a bed. The limbs jerk once and then it's over. This happens all night and approx 5 times a day. It started about 2 years ago when he was able bodied.
Althea
My Mum has these, she has CBD. They are called myclonic jerks. They were quite mild but now are very strong in all her limbs and cause her pain when they occur. On top of that her legs never stop moving. This all keeps her awake and the jerks wake her up too. She has had the jerks for about 4 years and they keep getting stronger.
my husband has these and he has CBD they just happen at anytime some are big some are small. it wakes me up in the night sometimes