Hi all I am 36 yo man and was diagnosed with Parkinsonism after getting an abnormal DATscan on March 2016 (I was 35) I have had symptoms since I was 34... Recently (July 2016) the consultant diagnosed me with Young Onset Parkinson's Disease due to me responding to co beneldopa but the symptoms seem to be getting worse as of late it's really affecting my walking... Recently I had my medication changed to Stalevo which could well be an issue need to speak to my PD nurse... I don't have a tremor.
My first symptoms were my right hand not using it then it formed a dystonic look where it would claw the clawing is there all the time but can get movement time to time, then it affected my gait as I couldn't lift my right foot up towards my shin so was causing me to have a slapping of the foot now I have had a pain/heaviness in my right thigh which is causing me to drag my foot more although up to now *touchwood* I've had no falls... My left side isn't affected at all at the moment... And more recently (last week) I've developed a pain in my right hip which which in turn has affected my ability to get out of a chair by myself and my ability to walk long distances due to the pain I have been to the doctors about it yesterday she thinks it's a pulled muscle band or hip bursitis (she has referred me for a scan) also rang the PD nurse up and she thinks that my gait (slapping of the foot) has been to much for my leg and caused a muscle strain and has referred me to a neuro physio.
I have read about symptoms of CBD and that it normally starts affecting one limb normally a hand, but then YOPD has cases where their hand became dystonic... I have also read that CBD affects 40+ year olds (rare) but normally affects 60+ year olds couldn't find any information that it affects under 40 year olds... What is the youngest case you've come across as I am under 40?
How did your CBD start and progress? And how did it affect your walking progression wise?
Sorry to ramble on I guess I should take the consultants diagnosis of YOPD as they know what they are talking about... Just it feels like the symptoms are progressing quickly.