MY QUESTION IS THIS : IF YOU HAVE PAIN WHAT DOES IT FEEL LIKE ?

[edkor]

MY PAIN FEELS LIKE MY HEAD IS SUPPER HEAVY AND IT WILL GO DIRECTLY TO THE CENTER OF THE EARTH ! ALONG WITH MY OTHER PAINS THAT IS ABOUT THE WORST.

[jimandsharynp]

My wife had PSP for six years but not any pain to speak of on a regular basis. Once in a great while she would have pain in one arm but nothing bad. Jimbo

[edkor in reply to jimandsharynp]

I RESPECT YOUR OPINION JIM BUT HOW COME PAIN IS A LARGE PART OF MY PSP EXPERIANCE

[edkor in reply to edkor]

IT SEEMS THAT THE LACK OF RESPONSES THAT I AM IN THE MINORETY. SP?

[jimandsharynp in reply to edkor]

Edkor, Yes, I'd say you are in the minority. Although many symptoms appear over and over on this site I've not seen that much on pain. I believe that CBD may have more pain related to it than PSP but I'm not certain. If you go to the CurePSP.org site they are descriptions of PSP, CBD, and MSA and symptoms. If you haven't realized it by now PSP is not a one-size-fits-all disease. Almost every patient has different experiences when matched another individual patient. Sometimes they may have the same symptoms but to a different degree. This is a very frustrating disease because there are so many unknown's patient to patient. If someone has pain I'm sure they will post something soon. Oh, also the progression of the disease is different for patients. Some it moves faster than others. Some have plateaus where things are level for a short time then they proceed forward. Hang in there and don't get discouraged. Jimbo