My mum June ( shown in picture) has had Psp for 6 years she can not walk talk eat or drink . Lately she has developed fluid in her one hand

[elizalou1710]

( right side ) and both feet ! Can anyone tell me why ? Thankyou everyone on here for your posts which I find invaluable x

[dorothy-thompson]

Dear elizalou1710

Can you talk to a hospice about this?

Kind regards

Dorothy T

[elizalou1710]

Hi Dorothy mum is in a nursing home and they don't seem too concerned ! I am wondering if it is heart failure beginning which although doesn't surprise me I would still like to know x does this happen prior to passing ?

[SharonAB]

Dear Elizalou,

PSP aside - Is it possible that your mother is not drinking enough water and hence retaining fluid. Yes -it probably sounds like a contradiction in terms - but its a bodies way of trying to cope and I found out the hard way with my sister who had limited mobility (who didn't have PSP)- it can happen to such a degree that the skin weeps & splits to accommodate.

Regards, Alana - Western Australia

[jillannf6]

i `m sorry i cannot help you at all

it doss sound like arterial damage but i am really not sure

lol JIll

[elizalou1710]

Hi guys thanks for your replies maybe mum isn't getting enough fluid as all she has orally is the water I drip slowly into her mouth half a ml at a time so she doesn't choke otherwise she is fed by peg and has about 200ml down peg of water her jaw seems to clamp about every 5 seconds . The one ml syringe has been the only way she can take oral fluid without choking and even with this I only do 1/2 ml at a time and direct it towards her cheek and not between her teeth as she would just clamp down on the syringe . She then gives me a nudge with her foot when she is ready for another . I would recommend this method of giving fluid and I also do it with coffee x but obviously needs to be done with caution elizalou x

[jimandsharynp]

It could be due to the inactivity. My Sharyn had an issue with fluid in her feet but it seemed to come and go for no apparent reason. Like many things it's a side effect of a PSP side effect I think. When Sharyn would sit in her lift chair I'd bend her knees and put her feet up on the footrest part of the chair. I'd then put them back down after a bit. Don't know if it helped but she grew to like that being done. Must have made her legs feel better than always being straight outward.

Jimbo

[jillannf6 in reply to jimandsharynp]

hi jimbo

ARE YOU SITLL COJMIGN TO THE UK IN JUNE??

I HOPE SO FOR YOU ADN UR GRANDSONS SAKE ..

LOL JILL

[easterncedar]

I've seen this a few times with folks who are bedridden and don't move. The fluid collects in the extremities. One nurse dealt with fluid in an immobile arm and feet with gentle massage and repeated basic movements - raising the arm, bending the arm, raising the leg, bending the knee - that sort of thing.

[elizalou1710]

Thanks jimbo hers comes and go s too x I do try and re position her legs and it seems to help x

[elizalou1710]

Yes easternceder massaging her feet does help and she seems to like it x