Please can a Tick Box be added to all questions and comments... That way we can show support to each other. As I read but am afraid

[Brighteyesxxx]

To put my true feelings down incase they might upset someone... Just a tick would show we are not alone on this horrid journey... [e-mail]

[Heady]

Hi Valerie

You are NOT alone. We are all out here, just waiting to hear from you. That's the wonderful thing about this site, nobody know anybody else, so please say EXACTLY what you think. Who can you upset? As long as you are not offensive, nobody will mind. What you need to say, I can guarantee we are all thinking!

Perhaps you now need to change your user name as you have put your email address down, but after that, go for it!

This disease sucks, it ruins everyone's live. Not only the sufferer but the carers as well.

Not sure which you are, but PSP effects at least two people!

My husband has PSP, in one way he is the lucky one in our relationship. Apathy is huge for S, so I'm the one who does all the worrying, plus looking after him etc.,etc.,etc..

Looking forward to hearing from you!

Lots of love

Heady

[Hidden in reply to Heady]

How true!

[dorothy-thompson]

Dear Brighteyes

Heady is right, just tell it how it is, you will soon learn that it is incredibly cathartic, and we have a tale to tell far better that those blogs that just say "I'm on the train" or other equally inane nonsense.

We carers are doing an incredible job and saving the country thousands and thousands of pounds into the bargain. Of course we don't want to deliberately upset anyone, but so what if we do, no one on this site will think any the worse of us that's for sure.

PSP could be a long rocky road so you need some companions along the way and that's what we all are.

Take care, kind regards

Dorothy T

[SharonAB]

Dear Brighteyesxxx,

I am tending to use the recommend button more and more with what I read to support another 'members' post..

There's no doubt about PSP. It hits all and every part of your life and it is so hard to explain 'to an outsider' how exhaustive and zapping of energy it is.

For example - Today's was Mothers Day in Australia - And the first time my daughter was at an age to treat me with TLC - but PSP came first again!- for which both she and I hated (however we will have to dismiss what happened in a few hours time to keep sanity intact..)

Regards, Alana - Western Australia

[easterncedar in reply to SharonAB]

Sorry your Mother's Day got hijacked, Alana. I hope you and your daughter manage some happy moments sometime soon to make up for it. She sounds like a real trouper, your girl, good job. Easterncedar

[SharonAB in reply to easterncedar]

All was not lost on the day - A couple of guys heard Chloe speak at a local Chinese restaurant the other day- She spoke of her Daddy with PSP over the years. Now they have asked if they can help with fixing up the home for sale so Chloe and I can have back some normality back in life. They started on Sunday afternoon, and are arriving back to help shortly (One of them said - Nobody can be expected... to retain sanity and continue to handle.... )

I feel so humbled by their generosity - and going through a stage of not knowing whether to laugh of cry...

Regards, Alana

NB And I've got a girlfriend who is checking on me and keeping tabs...

[peterjones]

hi brighteyesxxx I do not think you will upset anyone on this forum mate they have all been through to much already\\ please do not be afraid \we are all here to give support to each other \ take care don't worry peter jones queensland Australia psp sufferer

[suziewong]

Hi Valerie

We are all behind you on this journey and all need to vent our feelings and know we are not alone. It is a wonderful site where we all support each other. So feel free to say what you feel or ask any questions.

Love Suzie W

[jillannf6]

hi

i agree i have psp and cannot wait to see all the comments which ar emade

(but you should not have just given your email address out~)

lol Jill

[shasha]

hello brighteyes

please take notice of all the comments - everyone needs a friend to let your hair down with and this wonderful forum is just the place to do it - take care

love sharon

[Hidden]

Hi brighteyes

I have PSP ,but a long time ago I decided to read this site as it was better to know what was coming (or might be coming) than put my head in the sand so please take note of how the others have replied to your post ! I agree with them!!

[jimandsharynp]

You are not alone and feel free to share the most private thoughts here. Most of us are hardened PSP caregivers or people who are suffering from the disease and may be helped by your input. We are all here for one another. I think if you look through prior comments on various topics you'll note that nothing is held back.

Jimbo

[easterncedar]

Just reading all these comments makes me feel stronger and less alone, Brighteyes. I hope that's true for you, too. It's all true! Thanks to you, Jimbo, for staying with us and continuing to offer your invaluable advice and guidance, even as you grieve.