¿Qué significa PSP?: - PSP Association
¿Qué significa PSP?
hi gmunsot can you translate for me the QUE bit for me please I understand the significant psp ]] peter jones queensland australia psp sufferer I hope you can understand English gmunsot
Good morning, Mr. Jones, I think it's just a question, "What does psp mean?" I don t know enough Spanish to answer. EC
hoi mrs eastern cedar well mrs c I was stumped on the QUE WITH THE SQUIGGLES IN FRONT OF IT AS YOU CAN SEE I HAVE NOT GONE AWAY WITH VAN I HAD TWO FALLS YESTERDAY ONE WAS IN WOOLWORTHS SUPERMARKET I ONLY HAD MY WALKING STICK WITH ME \\ I FELL OVER BACKWARDS ONTO THE ORANGES STAND SOMER BLOKE RUSHED OVER TO ME TO PICK ME UP ON THE LIFT UP HE SAID ARE YOU ALRIGHT I REPLIED YES VERY QUICKLY BECAUSE A CROWD WAS STARTING TO GATHER AROUND ME AND I THANKED HIM FOR PICKING ME UP OUT OF THE ORANGES AND SWAGERED OFF SWINGING MY STICK AROUND ME ITS THE FASTEST I HAVE WALKED FOR A LONG LONG TIME BECAUSE I NEVER LOOKED AT THE ORANGES THAT WERE PROBABLY SQUASHED ON MY FALL AND I THOUGHT WITH ALL THE COMOTION THE NEXT PERSON TO PICK ME
UP WAS GOING TO BE THE MANAGER ABOUT THE ORANGES ANYWAY I DONE A U TURN AT THE END OF ISLE ONE AND HEADED FOR THE DOOR ENTRANCE WHICH I MADE IN GOOD TIME AND CASUALLY STROLLED OUT INTO THE SUNSHINE WITH MY SUNNIES ON MY HEAD I LOOKED LIKE SPIDERMAN 4
THE OTHER FALL WAS QUITE SIMPLE I GOT OUT MY PAJERO AND GOT MY FEET ALL TIIED UP IN A KNOT BY THE RUNNING BOARD OF THE CAR AND JUST SIMPLY FELL OVER I SAY SIMPLY BUT NOTHING IS SIMPLE WITH ME AS I FELL A CAR CAME DOWN THE HILL AND I THOUGHT GAWD HES GOING TO RUN OVER ME JUST LIKE THOSE ORANGES I -SQUASHED BUT HE WAS AN OLD BOY HE STOPPED HES CAR GOT OUT AND CAME UP TO ME AND SAID ARE YOU ALRIGHT MATE I SAID OF COURSE I AM I WONT TELL YOU THE OTHER PART OF THE CONVERSATION BUTY IM ALRIGHT BEHIND THE WHEEL OF THE CAR AND SITTING DOWN BECAUSE YOU CANT FALL OVER LIKE STANDING UP -----------------AND TURNING AROUND CAN YOU MR C ]]] BUT TRUTFULLY I WAS SHAKEN UP BY THESE TWO EXPERIENCES SO I DID NOT LEAVE FOR PITSWORTH WHERE I WAS GOING TO GO BUIT I MIGHT GO A SHORTER DISTANCE TO SOMEWHERE ELSE MAYBE THE END OF THE WEEK W ILL SEE HOW IS YOUR LEG NOW AFTER YOUR FALL MRS C OK I HOPE WHAT DID MR C SAY '' IM NOT THE \ONLY ONE WHO FALLS IN THIS HOUSE'' I HOPE YOU CAN GO TO THE LAKE PLEASE DO NOT PUT IT OFF STRIKE WHILE THE IRON IS HOT MATE DO EVERYTHING YOU CAN WHILE YOU CAN THATS MY THOUGHT FOR TODAY AN WELL YOUNTWO CEDARS ITS TIME FOR ME TO GO SO TAKE CARE BE NGOOD IF YOU CANT BE GOOD BE CAREFUL SEE YER PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER STICK WITH IT MR C & MRS C YOUR DOING JUST FINE
Peter,start going to mattress shops...there it will simply seem like you are testing the beds and it will be a lot easier on your body...may as well laugh,best regards,Rollie
HJI NOMANSLAND NOW WHY DIDNT I THINK OF THAT A MATTRESS SHOP THATS A GREAT IDEA I MIGHT BE ABLE NTO EARN A FEW BOB AS WELL TESTING THE MATTRESES IF YOUR GONNA FALL YOU MIGHT AS WELL BE COMFORTABLE MY BODY TELLS ME THIS NOW AFTER MY ELBOWS ARE A MESS AND ME CRACKED RIB IS HEALING AND ME HEADS NOT TO BAD NOW
AND MY KNEES ARE JUST ABOUT RIGHT AGAIN AND THAT BIG BRUISE ON MY ARM AND BACK ARE NOT HURTING SO MUCH NOW AFTER ALL I HAVE HAD A DAY TO GET OVER IT BOY OH BOY WHAT A FINE MESS I GET MYSELF INTO THANKS PSP FOR EVERYTHING THE SWALLOWING THE COUGH THE ACHES AND PAINS BUT======= IM STILL BREATHING AND I WILL NOT GIVE IN TO PSP WELL NOT YET ANYWAY SO THANKS FOR YOUR HUMOUR ROLLIE YOUR BLOODS WORTH BOTTLING MATE SEE YER PETERJONES QUEENSLAND AUSTRALIA PSP SUFFERER
Peter,I suppose you are in bed thinking of orange juice,I received a tel call from your grocer asking me to tell you to stay away from the egg dept next time you come to his store to shop!!!! regards,Rollie
WELL ROLLIE THATS STRANGE BECAUSE HE HAS JUST FINISHED TALKING TO ME AND HE ASKED ME IF I COULD ADVERTISE HES FREE RANGE EGGS I SAID TO HIM DO YOU WANT SOMETHING EGGCITING SO HE SAID WHAT ABOUT A SONG SO I POLISHED UP MY VOCALS AND STARTED TO SING ======= HOME HOME ON THE RANGE WHERE THE DEER AND THE ANTELOPE STAY\\\\ WHERE SELDOM IS HEARD A DISCOURIDGING WORD AND THE CHICKENS RUN FREE EVERY DAY NOW YOUR TURN MATES HOME HOME ON THE RANGE
ETC=========== COME ON THEN EVERYBODY SING IT ====
THATS GREAT\\ WE OUGHT TO MAKE A PSP CHOIR
GET OFF PETER \\\ OK I WILL GO THEN\\\ SEE YER EVERYBODY THANKS ROLLIE TAKE CARE OF MRS ROLLIE GOODNIGHT TO YOU PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER I THINK ITS GOT TO ME ==== HOME HOME ON THE RANGE== I DO HOPE THAT THIS HAS CHEERED YOU ALL UP A LITTLE BIT AND MAYBE FORGET ABOUT PSP FOR 5 MINS GET OFF PETER =OK IM GOING
NOT TO SURE ABOUT THAT WORD DISCOURIDGING CLOSE ENOUGH
GET OFF PETER OK IM FINISHED HERE \\ GOODNIGHT ALL
You are indeed a good sport Peter...we will drive her until she flies off the rails...PS are there kangaroos around your house...here in nova scotia all we have are cats....I ve seen kangaroos on TV, boxing,,be careful !!!! Rollie
hi rollie no kangeroos around our house mate not yet anyway I am doing this em because im not sure if I answered your em last night I remember the name nova scotia from my school days but that is all I remember mate
ive seen plenty of wild ones though the farmers do not \like them much they eat to much in times of drought some of them are a massive sise for a roo
some of the big reds are good
for boxing they have a longer reach\\ ha or boom boom]]
well mate cant say anymore at present so take care of yourselves look after mrs rollie tell her to hang in there petrer jones queensland Australia psp sufferer
Peter where are you...no news from you lately,hope that you are ok,Rollie
hi rollie im ok thanks I went to lunch on mother day and I thought I would play the poker machines after I got there ok but I went to sit on a seat and the blooming thing twisted around and shot me off of it like a rocket I hit my head with an almighty crash on some wooden stand for a machine to sit on never cut it open but I will have to wear a hat about 4 sises to big for me so its qui9tened me down a little for a while anyway some old boy came to pick me up I think he was worse off than me poor old bugger but with a bit of help from all around they got me up ok and one elderly woman was giving a running commentary on how I got on the seat and it turned around and i flew off and where id hit my head and that I would have a headache afterwards anyway mate thank s for your concern just a bit off colour for a little while see yer rollie and mrs rollie a little later on take care peter jones queensland Australia psp sufferer and bump on the noggin person thanks again mates see yer
Honestly Peter, you really like to live life on the edge! Don't you fall enough, without finding other ways to crash to the ground. Or am I missing something, was there a pretty young lady to help you up?!!!!!
hi heady thanks for your em mate I don't think I like to live life on the edge heady I think I ought to change my name to yours mate
HEADY I think it would suit don't you mate now I hve abput 56754567999-==00876655 to answer before I go to bed so if you wi;ll excuse me mate I will say thank you for your em mate its always a pleasure answering you mate have a great day and smile please
even if you have nothing to smile about peter jones queensland Australia psp sufferer
SMILING!!!!!! Nice way to start the day. Let's hope it's lasts. Lovely and sunny here in UK, going to spend it catching up on the gardening. Got S's crash helmet ready!
Lots of love
Heady
Peter...you know that a shot to the head is not a recommended treatment for PSP,altho who can be sure,!...at least did you win a few dollars for the vacation ,where are you going,regards,Rollie
Hi peter jones. Sorry to hear about your falls, please take care or mrs jones will have an attack of sorts especially as she may have to pay for the orange squash! I have a picture of you in the shop in my mind and can't stop laughing. Take care.
THATS THE WAY MADDIE KEEP ON LAUGHING ITS BETER THAN ALL THE MEDICINE GOODNIGHT MATE PEYTER JONES QUEENSLAND AUSTRALIA PSP SUFFERER
Oh Mr Jones, what are you like! Despite your obvious distress and being shaken up, you still have us all laughing with your antics. What a joy you are! Seriously though, I am sad you had to cancel your trip and I hope you feel well enough soon to rearrange. Just to confirm Eastern Cedar is correct, Que means what or why, depending on the context and the Spanish punctuate a question with an upside down question mark at the start and a question mark at the end. Stay well and stay safe Mr Jones!
WELL SHARON 37 YOU WILL HAVE TO BE THE LAST ONE TO ANSWER O TONIGHT MY ONE FINGRR TYPING IS ON THE BLINK MATE I WANT TO THANK YOU FOR YOUR KIND WORDS YOU ASK WHAT AM I LIKE I CAN ANSWER\\\ A BIT OF A NUISENSE I SHOULD THINK\\\ I WILL GO ON MY TRIP AT THE END OF THIS WEEK ALL BEING WELL IF NOT THIS WEEK I WILL GO SOME OTHER TIME \\ THANKS FOR THE SPANISH LESSON MATE IT MUST BE GOOD TO SPEAK ANOTHER LANGAUGE I TRIED JAPANESE ONCE
BUT DID NOT GET VERY FAR WITH IT ]\\\ ANYWAY MATE IM OFF TO KIP SO TAKE CARE THANKS AGAIN FOR YOUR REPLY AS OU CAN SEE I HAVE ENOUGH TROUBLE WITH ENGLISH LET ALONE SPANISH THE CLOSEST I GOT TO LEARNING SPANISH WAS WHEN I PLAYED SOCCER AGAINST A FEW OFTHEM WHERE I WORKED BUT I DO NOT THINK THEY WERE GOOD WORDS THAT THEY WERE CALLING OUT TO ME SEE YER MATEY
REMEMBER LAUGHTER IS THE BEST MEDICINE AND IF YOU CAN LAUGH AT YOURSELF YOU ARE NEARLY HOME AND HOSED SEE YER PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERRER
Never a nuisance to us, just a bright spot in our days! I hope you get to go on your trip soon. Japanese? You had to go and pick one of the hardest ones didn't you. I don't speak much Spanish at all really, just the tourist stuff I am ashamed to say! That doesn't include naughty ones so maybe you'll have to teach me those, might come in handy 
Take care of yourself.
Hey Mr. Jones - I do admire how you keep picking yourself up. Mr. C is really stalwart that way, too. You guys are heroes. Me, I've been moaning for the last month since a fall put my left arm out of commission - legs are still serviceable, though! I have to be careful to keep the other arm available to help Mr. C, cause when he starts to go over I tend to throw out whatever hand is closer, and I've had a couple of setbacks that way - and have yelped a bit, I'm embarrassed to admit. When, like you, Mr. C fell in the grocery store the manager was pretty worried that he was going to sue, and we had a Very Nice letter from the central office trying to forestall any legal action. It's too bad they have to think that way. (Who can we sue for this whole psp thing?) Mr. C left his walking cane in the cart at the store, so now he's using my wooden hiking staff, and that is working okay. I call it my ruffian whacker, for when I'm in the woods on my own. Dual purpose support! He fell out of the car, too, like you. I was in the driver's seat, waiting for him to get in, and he got one leg in and then didn't have enough strength or momentum to follow through. He just started to sag, and had subsided to the ground in slow motion before I realized what was going on and could run around to help. No harm done, except it's so frustrating and troublesome for him. Oh well, we have a good time in between disasters, and what more can we ask for. Hang in there, dear Mr. Jones. I hope you get your trip rescheduled soon. All the best, Easterncedar
Peter, Keep your feet mate! lol Seriously, watch the falls. A PSP patient we know fell and had a brain bleed and concussion. Not a place you'd want to visit mate! With PSP a trip to the hospital (physical not mental lol) won't do you any good and probably something bad. How many pints did you have when you fell? What pub were you visiting? You neglected to tell us that part of the story mate. lol
Jimbo
\\well jimbo to tell you the truth I had only 3 glasses of water that day mate with not a drop of scotch in sight\\\ it was hidden behind the cupboard door \\only joking mate
im not a drinking man really I never go to the pub but I might have a drink at home if I have some in the house accasionally hic scuse me ljimlo but you talking about mental hospitals my wife and I used to do lot of charity work in those places wg-here ypou had to have a digit code to get and out well guess who forgot the digit numbers yes mate it was me I was ok right up until someone came up to me
and ask me how long have you been in here so I must have looked odd even then mate \\ well jim some parts of a story you got to leave in but there are some parts you gotta take out
anyway thanks for your advice mate will inwardly digest it but I shall still fall over mate regardless its something I cant describe very well but I know it happens cause I have big black bruise on my ar\m and back that's why I know I have fallen over and it does not matter one single bit if my wife tells me to\ be more careful or the physio lady I know its not the last time i am going t fall what I worry about is getting up again as long as I can manage that I will be happy with myself so goodnight mr jimbo take care look after sharyn and tell her to hang in there see yer peter jones queensland Australia psp sufferer
Peter, The danger in falls is not the bumps and bruises. The real danger is in breaking something that requires surgery (hip comes to mind). Going under anesthesia is definitely not good for dementia disease patients. PSP is in that category. My BIL who is a anesthesia nurse said many times dementia patients never get back to their pre-surgery status after having anesthesia for an operation. I don't think you want to go there. My Sharyn became immobile before any serious falls happened. Although she had early balance issues (feeling like she WOULD fall, she wasn't real overly prone to falling. Now bound by a Hoyer lift falls are off the agenda. Thanks for your posts. Jimbo
mr % mrs \\eci,know your em is two days old but I thought I would latch onto it we are going away tomorrow plans have changed just for the weekend come back on Monday as I had another two falls today one just 30ins ago with that one I had trouble getting up boy its no good getting older I can tell you\\ anyway we
will go tomorrow rain wind or hail or psp will stop us but we will only go with one one friend of 46 years this time \\\\\\ it will be great MATE \\ so see yer when I return
mr & mrs e\cedar take care go easy on the bike mr C DON T OVERDO IT WHILE IM GONE WILL YOU PETER JONES QUEENSLAND AUSTRALIA
OUR VAN HAS SHOWER AND TOIILET INSTALLED SO YOU CANT GET TAKEN SHORT
PSP MERCHANT AND ORANGE FLATENER SEE YER
What means PSP?
Hola Mr. Jones. I will write the questions in English and please write to me as same. My language is Spanish but I can understan and help me with a dictionary.
hi gmunsot how are you and thank you for your em mate I am glad that you wanted me to answer you in English as i do not understand a word of Spanish my friend how did your holiday go or how was your
holiday ok I hope and you had a great time
I will not make this em any longer otherwise you might have trouble translating it take care peter jones queensland australia psp sufferer
although your English looks pretty good mate
gmunsot I understand that u are asking what is the significance of PSP - it is a terrible untreatable neurological where the suffer progressively loses the use of many parts of the body - it cant be cured & there is not treatment Mary
Marytea, thank you very much for your answer. Mi second question is:
What is the relation betwin PSP and Parkinson?.
Thanks again
Dear Gmunshot
PSP is sometimes misdiagnosed as Parkinson's because the early symptoms are similar. PSP damages the parts of the brain that controls balance and movement so it can look similar. Unfortunately this is only a small part of the disease. In Parkinsons, medication can control the symptoms for a very long time. In PSP there is no medication to help and the disease is more aggressive so the life span is usually much shorter. I am keeping this very simple so the English is not too hard to follow. I have a document in Spanish that I prepared in case my father had to go into hospital which outlined his main symptoms and problems approximately 9 months before his death. I could send this to you if you think it will help.
Kindest Regards
Sharon
Hi Sharon,
Is it possible you could also send it to me? My father is Spanish and it would be of great help if you could.
*username*@aol.com
Thank you and God Bless!
yes of course. I will try to find it as soon as I can this week and send it to you. It deals directly with his specific symptoms so the nursing staff knew what to expect and everyone is different. This was several years in to the illness so there were a few!
Dear Sharon637
Thank you very much for your answer and, yes, it will be veri important to me to know about your father wrote.
If you prefer my e mail is yacatas1@gmail.com
My name is Guadalupe and I have parkinson.
Regards.
I am sorry to hear of your illness. The document prepared was for the nursing staff if my father had to be treated in hospital, it mentions his specific symptoms at the time. I will find it as soon as I can this week and send it to you but please do not let it frighten you. If you have Parkinson's Disease you will not develop many of these symptoms and hopefully your neurologist will be able to provide medication to control your symptoms. Take care!
hi gmunsot PSP MEANS PROGRESSIVE SUPERNUCLEAR PALSY I AM SORRY I CANNOT SPEAK OR RATHER WRITE IN SPANISH FOR YOU BU I THINK THE NAME WOULD BE THE SAME HOW IS YOUR PARKINSONS OK I HOPE ALL THE BEST PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER
Hola Peter Jones:
Thank you for your answer and I undestand now that is very diferent with Parkinson.
I am very well, in 2o fase, doing yoga and therapy. Next saturday I leave to Europe and today my neurologist found me very well.
I'll see you after may 22th
Guadalupe México City
good on yer gmunsot I always have to look at your name to spell it ok mate\\ I will look out for you on the or after may 22 nd I hope ypu habve a wonderderful=trip mate please enjoy yourself its nearly over now mate but I hope it was great for you take care peter jones queensland Australia psp sufferrer
Sorry if uncomfortable to them.
This Forum took ideas, techniques and information that do not tell the doctors, to take care of my mother who died of psp on April 18.
I live in Northern mexico, there's also psp, 4 cases we have had in my family until today (and assumes that psp is not genetic). We have to much information for this disease
I understand that this forum helps everyone regardless of the language that we speak.
Those who speak Spanish we make an effort to communicate in their language. do you not do why?, it is as easy as using a translator.
This disease is unpleasant and painful and will it more if we do not help each other.
Psp es parte de 4 enfermedades que estan agrupadas como parkinsonismo plus. Esas enfermedades son: parkinson, alzheimer, cuadros de lewy y psp (parálisis supranuclear progresiva). Te dejo un link que aclarará todas tus dudas. Cualquier cosa, estoy a tus ordenes.
espanol.ninds.nih.gov/trast...
Querida Rosal, muchas gracias por la información, me quedó claro que lo mio es un parkinson leve porque ahora, con nuevos estudios me diagnosticaron polineuropatía sensitiva-motora (degeneracion axonal y desmielizante segmentaria) severa para miembros inferiores y leve para los superiores, así resulta que no se cual es peor y tengo que esperar al dia 14 para tener todos los estudios completos, que deerminan el origen de la enfermedad y de acuerdo a él, el tratamiento, Unos son rehabilitables y otros no. Comprenderás mi inquietud en estos días.
Si sabes algo de esto por favor envíamelo porque ya he visto cientos de páginas de internet pero no conozco a nadie que la padezca.
Nuevamente te agradezco tu atención y te envió muchos saludos.
Guadalupe (vivo en la Ciudad de Mexico)
Hi Peter & Rollie,
I guess like everyone else, I've been chuckling reading your blogs today! Thanks guys, we all need to laugh and as we spend all our time and energy on this blasted disease, I suppose the only thing we can laugh about is this "wonderful PSP"!!!!
Please keep it up as long as you are able.
Lots of love
Heady
hi mate I think you should be thanking all the ladies that wrote into you not i peter jones
so when you get back drop a line to them mate because that's were your answer comes from hope you\ had a real good time see yer peter jones queenslandl Australia
I am in hospital at the moment so its a bit hard to communicate
Hospital! Oh Mr. Jones! What have you done now? We have been traveling a bit the past few days. I only just read about your escapade at the casino - shooting off the swivel chair. What was it this time, table dancing? I hope you are not hurt too badly. And you poor wife! I suppose after all these years she knows you can't be quelled, but her poor nerves! Get well fast, dear Mr. Jones. Love and Peace and no more falling! Easterncedar
Hola Peter Jones. Thank you for your words and I tray to do my best in english.
I have a beautiful vacations with an excelent first week in Taormina Sicily then I flew to Rome for have a cruise iin Mediterrean sea, my secons was almoust good and the third also, but qhen arrive at home in Mexico y started to feel in inbalance relative strong. Probably was the very long fly, a certain emotional state. I don't know.
I am in the fase II and excep for tha unbalance I lok well.
I would like more about yours comdition.
I am new in thiz program
Regards
Gudalupe
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