Rare Disease Day, 29 Feb, 2012

[Fiona_McL]

Hi everybody

International Rare Disease Day is marked on 29th Feb- keep an eye out for any events in your area.

In NI, the PSP Association have been very involved in the development of a Rare Disease Partnership, which is being launched by the local Minister of Health on that day.

The Pavilion, Stormont Estate, 12.15

If you'd like to attend and talk to politicians and policy makers, contact Sarah McCandless at 028 9032 1230

Maybe see you there!

Fiona

[jillannf6]

HI FIONA

AS USUAL U R UP TO THE MINUTE WITH THESE ASEPCTS OF TEH PSP

I SHALL LOOK OUT4 ANY NEWS ON THE SUBJECT

LVOE JILL

[MJ-Mark]

International? Really? I have never heard of it. But, then again, I am in Canada....ZERO SUPPORT here for PSP. I always tell my Dad that he had the bad luck of geography....UK has such a fabulous support system in place. I must look into the international thing......will let you know if Canada has such a thing...

Thanks for letting us all know.

MJ

[LesleyB]

Thanks Fiona

I'll keep a look out in this area too. Hope you are well

Lesley x