International Rare Disease Day is marked on 29th Feb- keep an eye out for any events in your area.
In NI, the PSP Association have been very involved in the development of a Rare Disease Partnership, which is being launched by the local Minister of Health on that day.
The Pavilion, Stormont Estate, 12.15
If you'd like to attend and talk to politicians and policy makers, contact Sarah McCandless at 028 9032 1230
Maybe see you there!