quick story I don't know if this is the right place to post I just really need to talk to somebody and I have a week to wait for my results and I'm really in my head.
first off I'm already a cancer survivor I had kidney cancer in 2015. Was caught early lost a quarter of my kidney. So I'm already very scared
because my history my primary care doctor has checked my PSA the last two years last year it was 1.4 this year it jumped up to 18.5.
he immediately referred me to a urologist who retested and it came in at 16 so he proceeded with giving me an option to do a MRI or biopsy he suggested the biopsy so we could get the quickest answer.
I had my biopsy today and I didn't expect him to say anything. but during the biopsy he mentioned that he was going to change our follow-up appointment to an in person appointment and seeing that I was upset said don't worry we'll get you to the cancer center quick. And I said wait I thought you won't know till the biopsy comes in and he said I don't know for sure but from what I'm seeing here and with your numbers and weight loss it's very highly likely that you have prostate cancer. And then he asked the radiologist or the tech that was doing it and he's like yeah.
and then when the doctor left I asked the radiologist what he thought again and he said yeah it looks likely and I said it could be anything else from what you saw and he said not likely but I guess it's possible. At that point my head sort of zoned and I think he said said something about seeing something… But I thought it couldn't be seen completely with an ultrasound question
and now I have to wait a week for the results and I'm all up in my head! I guess my question is not that I'm looking for hope at this point I've already been through this so I'm partially accepting it and trying to wrap my mind out and what my treatment options would be but I'm also holding out hope for another diagnosis. Is there anything else that could be confused with that on an ultrasound or if the urologist in the tech implied that it's very likely it couldn't really be confused with anything else? Could prostatitis or BPH be confused without an ultrasound? Or am I just waiting for the inevitable at this point…
thank you for reading my story those that did like I said I'm not sure if I'm posting in the right place but I just picked one of the random forms about prostate cancer. Thank you everybody
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Traph
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The waiting game is so hard! Navigating the territory between hope and readying yourself for bad news is a tough limbo to be in. I'll share some insights from our journey that may give you hope regardless of the answer. My husband was diagnosed with prostate cancer in 2023. The good news is that if it is localized (contained within the prostate), the 5-year survival rate is greater than 99%; for prostate cancer that has spread to lymph nodes in the region, 5-year survival is 97%. For advanced prostate cancer that has spread further, the odds change to 34% at 5 years, but significant advancements in treatment made in recent years are now improving those odds. The overall average of all cases is 97.1% survival at 5 years. I guess my point is, NOBODY likes to hear the "C" word, but you have a hopeful path ahead regardless of the results! (Source for stats: National Cancer Institute, SEER database: seer.cancer.gov/statfacts/h...
Would it help you to make a decision now about how you want to use the 5 days until you receive the results? Do you want to proactively focus on other activities? Study up on prostate cancer so prepare to ask good questions when the results come in? Other? Look for ways to fill your mind proactively and remove "worry" as the only activity while you wait.
if you caught it early still in the prostate and contained then you have a great chance for a cure.
If it is cancer seek an oncologist immediately before you make any major decision like prostatectomy. There are many options.
Join the “advanced prostate cancer “ group right away snd ask for advice. We have over 20,000 of us warriors on there.
Get genetic testing done on the biopsy and get a complete genomic testing done on your germline. The reasoning for n the complete genomic is they are always adding new genes to the genetic cancer screen panels.
I feel the best way to deal with my cancer is to study study study till you reach a point where you can relax because you’re at a point where your cancer is being treated with the best treatment.
Also prostate cancer is a slow growing cancer so it affords you more time to make an informed decision.
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