Thanks to everyone's responses on the initial post I made -- both patients and caregivers -- Darryl has assembled this new place to go for all of us. It was a very dark week for me, and I was surprised at how much the various (quite various) responses to my "call" really helped.
We can all feel so alone at times when facing this disease -- and it can, ironically, become easy to wallow in our isolation. I'm so glad I reached out and much more glad that so many of you reached back!
I hope this will be a really positive space for us all.