Brachytherapy research workshops - Ma... - Pelvic Radiation ...

Pelvic Radiation Disease Association

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Brachytherapy research workshops - March 2022

Sarah_PRDA profile image
Sarah_PRDAPartner
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Have you received brachytherapy for cervical cancer in the last 5 years. Researchers need your help.

Would you be interested in taking part in a research workshop which aims to improve the experience of people receiving #brachytherapy in the future?

Visit the PRDA website for further information: bit.ly/3LJPQzN

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Sarah_PRDA profile image
Sarah_PRDA
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12 Replies
Nerual_W profile image
Nerual_W

Hi All, I'm signed up to be part of this study - the researcher leading the work, Pauline, seems really lovely and is really keen to get enough patients to take part to really help make things better for patients in the future.

Personally, although the study won't directly change my treatment or physically fix any of my PRD symptoms post treatment, I've found that talking with other people (medics and patients) who understand what this kind of brachytherapy entails has helped me process and deal with the trauma a lot, and the idea of being able to try to improve things for others in the future gives me a sense of contributing and purpose coming out of it all.

Sarah_PRDA profile image
Sarah_PRDAPartner in reply to Nerual_W

Hi Nerual_W Thanks so much for your comment. It's really good to hear that taking part in research is helping you to process your experience.

I just wanted to pop the information about our monthly Chat Together support group if you would like join us and chat with other people with PRD. The next meeting is tomorrow at 7pm(GMT).

More details about the Chat Together can be found here: prda.org.uk/chat-together/

Summerhome profile image
Summerhome

Hi, I received Brachytherapy in November 2020. To be honest my life has not been the same since my Cervical Cancer diagnosis and treatment. Thankfully I was stage 2, so caught early but the impact on my health since has been life changing.I would be interested in finding out more and talking to others about their experiences. Kerry

Sarah_PRDA profile image
Sarah_PRDAPartner in reply to Summerhome

Hi Summerhome please contact the researchers if you would be interested in taking part.

I just wanted to let you know that we also hold a monthly Chat Together on Zoom if you would like to chat with other people with PRD. The next meeting is tomorrow at 7pm(GMT).

More details about the Chat Together can be found here: prda.org.uk/chat-together/

LisaVonDoll profile image
LisaVonDoll

I received it in 2015 and that and the other radiation has completely ruined my body, happy to take part if allow over 5 years

Sarah_PRDA profile image
Sarah_PRDAPartner in reply to LisaVonDoll

Hi LisaVonDoll , if you would like to take part please pop the researchers an let them know when you received treatment.

rachelgibb profile image
rachelgibb

Yes I would be willing to take part

HarleyQuinn82 profile image
HarleyQuinn82Community Pioneer

I’ve signed up 👍🏻

Zigoin profile image
Zigoin

Is this just for cervical, or womb as well?

Sarah_PRDA profile image
Sarah_PRDAPartner in reply to Zigoin

Hi Zigoin As far as I understand the researchers are looking for people who have been treated for cervical cancer but you are more than welcome to check with them, if you are interested in taking part.

Jimbo65 profile image
Jimbo65

Have you posted on Jo's Cervical cancer Trust forum. That could increase your study numbers.

Kanga01 profile image
Kanga01

Hi Sarah, if you are doing research with people who had Brachytherapy between 10-20 years ago I would love to be involved. I am still traumatised- mentally and physically from that- but doing ok of course . I think it brought on my PRD. I live in Australia.

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