I just had a flare-up of my PRD (urgency, diarrhoea, frequency-went 3 times within 1/2 hour ) almost immediately after eating some leftover Xmas chocolate after dinner. It seems like when I have my attacks, they seem to be almost instantly after eating.
Is it like that for anyone else? If I do get a flare-up seemlingly 'out of the blue', that is very rare :/.
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RoseTyler
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I’m a bit unusual as I’ve been told I have IBS-C - constipation is the main side effect, with loose bowels only after an ‘attack’. This means it can be 48 hours after I’ve eaten something, which makes it tricky to be sure exactly what it was. I find it can also be cumulative - so I’ll get away with a food sometimes, but not if I’ve had a small amount of a few other risky things. I’ve found it hard to find much advice about this sort of radiation induced IBS.
I was very bad just after Christmas, I think probably my own stupid fault eating things that I know my tummy can't cope with but it was Christmas. I had chocolate trifle and cream, christmas pud and cream and some cheesy pasta, not necessarily in that order! Wow did I suffer so never again. Was in bed for nearly two days solid apart from when I was on the loo which was definately most of the first day, coupled with severe stomach cramps. Also no appetite for 2 days.
I also can get away with the odd chocolate or 2 or maybe 3 and a very small amount of cream but I think I just went way over the top and suffered accordingly!
Back on the wagon now !
Happy Healthy New Year everyone and hope all our problems vanish......
Well it happened yesterday. I had some Vegan crepes at 1130 and then by 1800, I was feeling the horrible crampy pain, gurgling gut and had to rush to the loo with the horrible diarrhoea! I hadn't eaten anything else all day! WTF? It took 6 hours to kick off!? That is odd and annoying but it's the only thing of which I can think because of the oil used to fry the crepes. I had to go 6 times before bed! FFS, I can't enjoy any food any more, always worrying about my stupid bowels. They've been relatively stable for most of the Winter too (though I always take Loperamide if I go down the Pub ). My bowels are still a bit wonky today too so I daren't eat too much :(. I hate PRD.
I have had a particulary bad few months. I am being told PRD ‘goes away’ after a few years post treatment, so just IBS with leaflets on eating more veg from doc. However Im 20 years now. So gets lonely fighting on alone. It was kicked off by a couple of weeks drinking oat milk that I later realised isnt necessarily GF. Plus even GF oats seem to have gone off my safe list. Happy I am pulling it back again but still nervous travelling about. I’m dreading all the talk in work about starting to travel for face to face meetings again.
vegan crepes could be made w a high fiber flour. That is probably the reason. Use only white or white rice flour- or check the fiber content some almond flour, coconut flour, and brown rice is ok. But I usually ask if its a gluten free or vegan. If thwre were vegetablea then its added fiber also
RoseTyler,Thanks for comments. I too have to frequent the bathroom after eating, even though I am going to bathroom, even though the movements are very small. I end up going about 3 to 5 times in the span of a couple of hours. I am 11 years post radiation and have experienced a progression in the side effects of radiation. I have what they call a neurogenic bowel ( fancy way to say nerve damage from radiation). A neurogenic bowel encompasses symptoms ranging from bowel incontinence, frequency, urgency, diarrhea, constipation, and inability to get stool out.
I am not sure there is cure except to have colostomy or J pouch. If anyone has suggestions or treatments please let me know. I hear you and understand your struggle fully. I am sorry you are having to deal with those symptoms.
Yes my symptoms are about the same as yours :(. It's rubbish really. It's just gone 13 years since Treatment ended for me and the PRD has gotten so bad in the last 3 years. The unpredictability of when it'll just kick off and I'll get the crampy pain and need to rush to the Loo is the absolute worst :(. Good luck!
Immediately, or within an hour. Sometimes it starts with immediate stomach pain after one bite of food or one sip of drink. That's when I know my day/night is not good.
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