problems with legs: over the last week i have had... - PMRGCAuk

PMRGCAuk

20,922 members39,411 posts

problems with legs

yusuf profile image
5 Replies

over the last week i have had problems with walking leg no very steady even going up to steps very unstable leg swollen with fluid any one have same problems ?

Written by
yusuf profile image
yusuf
To view profiles and participate in discussions please or .
5 Replies
pandr profile image
pandr

I have terrible troubles with my legs, it is getting worse as I come down on the steroids. I have trouble getting out of a chair, and walking is awful, am walking with a stick at the moment.My legs are swollen, but not as bad as they were, I sit with my feet up to help the fluid.Around the house I have to hold on to the walls etc., its so painful, I say is it the steroids or just the GCA/PMR, the illness is such a problem. Some days are better than others, so keep trying. good luck.

Hi yusuf and pandr,

Fluid retention which is effecting the ability to walk and causing pain should be investigated by a GP.

Please try and see your doctors as soon as possible. Steroids do cause fluid retention, but if the legs are swollen very badly then the condition should be investigated.

Pats

pandr profile image
pandr in reply to

Hi Pats,

My GP and Rhemy know about the painful legs, the swollen ankles and feet don't really change. the swelling is usually there when I get up, I think the pain has got worse since going down on the steroids, I started on 60mg 10 months ago, and am now on 12.5mg. seeing GP this week after my blood test, and may have to increase again, Unfortunately I have heart problems as well, and very high blood pressure, so perhaps I,m not the best person to help yusuf But it is useful to know someone has a similar problem.

pandr

grace1 profile image
grace1

hi yusuf i have had trouble with my legs for 8mts they were badly swollen with fluid they started to leak fluid alot ihad to get a nurse out every day to dress my legs as i could,nt even walk to the door, i,m now down to 5mlg of presl, legs are getting much better i have only got the nurse coming out once a week to dress my legs as they are nearly healed please watch for small blisters has that is how it starts. grace1.

Kolla profile image
Kolla

Hi there

So have I when the steroids go down so do the legs and the blood.

All the same I am giving a walking joga class a chance to have me take part, starting tomorrow

Not what you're looking for?

You may also like...

Problems with leg

Hi everyone, Just wondered if anyone else has the problem with their legs that I have at the...

Problems when walking

Hi everyone, I’ve just joined this group. I’ve had PMR since last August & am currently tapering...

Problems with tapering

After over two years with GCA, I had reduced the pred to 4mg and was getting on well on that dose....

Stiff legs

Why I wonder although my rheumi has assured me in his opinion I no longer have pmr I have stiff...

Legs not arms

I've had PMR since January, 2016, and have gone up and down, usually being able to walk OK...