pmr

[amandybaby]

just found out i have pmr after on painkillers 4 three year

[trishyb]

Hi Mandy It is good you have finally been diagnosed and I hope you are feeling a little better and pain free. I was diagnosed with PMR last November and to say it came as a shock would be an understatement!! Are you taking prednisolone? This is the standard treatment for PMR and I started out on 30mg but am now down to 12 and hoping to drop to 11mg over the next couple of weeks. There is loads of support and information out there and some good support groups on facebook. Plenty of rest and short walks are a good help and hot showers can work wonders for the pain. Good luck and hope things go ok for you. Tricia x

[amandybaby in reply to trishyb]

thank u trisyb i am on facebook but can never find any 1 yes i am on prednisolone 15mg per day my name on facebook is mandy groves

[amandybaby in reply to trishyb]

could u let me know support groups on facebook , been trying 2 find them on facebook many thanks mandy

[trishyb]

hi Mandy sorry there are a lot of Mandy Groves on f/b so wasn't sure which was you? Whats your profile pic look like? If I can find you I'll add you as a friend

[amandybaby]

pooh bear

[amandybaby]

e mail on fb is [e-mail]

[meggies]

Mandy, if you go on the PMRGCA uk website's home page, there is a link saying this:

'Now you can join a forum to share your questions and experiences with people who have (or have recovered from) PMR and GCA'.

The forum has 400 members, has 25,000 postings on every aspect of PMR & GCA and related stuff and has been an absolute life saver for me. The forum also has details of various support groups across the UK. (A few expat ladies living in Spain even managed a meet up!!!!).

If you can't find it, I'll email you the link.

Margaret

[amandybaby in reply to meggies]

sorry cant find it my email is [e-mail]

[lwhynda]

Hi on fb if you type polymyalgia rheumatica in the search space you will find it if not I am fb and will try to add you as a friend

[meggies]

Hi Mandy, have just sent you an email,

Margaret