Hi, I thought I’d drop in as I haven’t posted for quite some time but I do receive notifications and read many of the posts from PMR members who are struggling with this condition.
To all of you who are still struggling with this challenging condition, I want to share some hope and encouragement. I was diagnosed early 2020, and after a difficult journey,, I was finally able to get off prednisolone and all my medications by late 2021. Since then, I’ve been in remission, feeling strong, healthy, flare-free and very thankful.
While it can feel overwhelming, especially if you’ve been on medications for quite some time, and quite frightening if you’re newly diagnosed, I want you to know that recovery is possible. Many people do recover, many people do get to a place where they no longer need medication.
Stay positive, take it one day at a time, and trust that healing is within reach and you too can find your way back to feeling healthy again just like I did.
Sending positive thoughts your way for strength and healing!
Wishing you all the very best on your journey to recovery.
Written by
Liby57
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Yes it is very possible stay positive and have faith. I had the condition and thought it was for life but slowly bloods got better and I started to feel odd days that I was more like my old self. Then bloods returned to normal and I am very thankful too. Atb
I felt very overwhelmed and quite scared at times. Stay positive and trust that you can find your way too feeling better again. Wishing you all the best 🙏
Happy to hear your good news and sharing will cheer many others who feel lost. I too have been very fortunate and feel blessed to once again feel great. Long may it continue and positive good vibes to all those who need them. 🤞it will get better 👍
Aaaw bless you for telling your story and thinking of us all still having these diseases.So very pleased for you and enjoy your new found health!xxx💐💐😜
Good to hear. Do you have any tips? Did you make any diet changes? Did you take supplements above the prescribed calciD etc? It would be interesting to make a study of people who have recovered within the minimum time span to see what, if anything, they have in common?
The version of the PMR - a very early paper by a leader in the field said it was clear there were two forms of the disease: one where it lasted IRO of a couple of years and the other where it could last significantly longer and a low dose of pred was likely to be needed for an extended period. The second part of his statement seems to have been excluded from notice ...
And no - they haven't identified any factor that can predict the course at an early stage.
Thanks for that. Do you know how I can see the report?
And no - they haven't identified any factor that can predict the course at an early stage. Do you know if this is because they haven’t found anything or because they haven’t looked?
They have looked but I can't remember the reference - in one of the Italian papers I think. I know I saw it again recently. But it is also mentioned in this paper and I believe it is the source of the 2 year myth because they registered the 23.7 months of therapy and ignored the rest.
such positive news, great to hear . I’m fairly new to all this and wondered how quickly you tapered. Half a mg at a time? And how long did you stay at each dose? Sorry for all the questions! All the best 👍
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Am I free of polymyalgia?
early days for me!
Pred free
Finally!
A thread or sub-group for all long-term PMRers
