Can a flare be averted: I've had PMR for 6yrs. with... - PMRGCAuk

PMRGCAuk

21,298 members40,383 posts

Can a flare be averted

ancientprune profile image
5 Replies

I've had PMR for 6yrs. with several flares. Now down to 5 mgs. .pred for 5 wks. and felt reasonably o.k. but noticing muscle twinges in arms lately. Today shoulder and chest on left side are really complaining. Had planned to stay at 5 mgs until after the holidays but now I'm afraid of a flare. There's been a flurry of family affairs which have probably been stressful for my 88yr old body that thinks it's50. Can a flare be averted by upping dose a mg or two or should I go up and start over again. Lot of fatigue which I attributed to adrenals trying to wake up. Rheumy doesn't do any thing but order meds from pharmacy, talk to him 5 mins. by tele-med and have an appt. in person in 5 mos. Your advice is most helpful and deeply appreciated. Thank you.

Written by
ancientprune profile image
ancientprune
To view profiles and participate in discussions please or .
5 Replies
PMRpro profile image
PMRproAmbassador

Our recommended approach for a flare due to having overshot the dose you need - the most common reason for a flare, especially when it is combined with a suddenly stressful situation - is to add 5mg to the dose at which you flared for up to 2 weeks and then drop back to your previously good dose.

There is very rarely any need to go back to the start but many doctors do so, increasing the amount of pred the patient takes in the end and the time it takes to taper. We don't think it should be like that.

ancientprune profile image
ancientprune in reply toPMRpro

Thank you for the quick advice. I'll be having family Christmas and don't want to be unable to enjoy it. I hope it will help with my back as well. Again, thank you.

PMRpro profile image
PMRproAmbassador in reply toancientprune

Speaking from recent personal experience - have you had your back looked at other than blaming it directly on PMR? Earlier in the year my rheumy did a steroid injection for sacroiliac pain - and since then, it has improved steadily but trochanteric bursitis and related low back pain persisted. This week he did 2 more injections targeted at them - and for the first time for years I have almost no pain and can move freely. I hope it lasts as long as the first injection has!!

ancientprune profile image
ancientprune in reply toPMRpro

Two yrs ago I had a compression fracture of lower back. It affected L3 and L4 but neither rheumy or spine doc did anything, just let it heal so perhaps that could have something to do with the pain that comes and goes.

PMRpro profile image
PMRproAmbassador in reply toancientprune

I have a misshapen L3 vertebra, found by the radiologist last New Year-ish. My rheumy does a spinal x-ray any time I develop new back pain but this is the first time they have seen anything. It is a really strange shape though, not the usual wedge of a compression fracture. Anyway, he wanted me to start zolendronate infusions, which I did. I also had horrible sacroiliac joint inflammation and he did a steroid infiltration under ultrasound guidance. The back pain improved a lot quickly but not all gone but has steadily got better over time. Then last week he did 2 more steroid injections for trochanteric bursitis - and for the first time for years I am pretty much pain free. At last.

Not what you're looking for?

You may also like...

Prednisolone Withdrawal Versus Flare

I have suffered from GCA for many years and know what a flare is and how to go up by 5mgs of...
Stkeyna profile image

Tapering after a flare

I posted at the beginning of April saying I had a flare up of my PMR At the time I was on 5/4 mgs...

withdrawal or flare

I have just reduced from 5.5 to 5 mgs of prednisone. For awhile I have been experiencing jello or...
Skier321 profile image

Covid jab during a diverticulitis flare with some PMR stiffness.

I am due to have my Covid booster on 18/5. I am experiencing a diverticulitis flare accompanied by...

Still in some pain having had a flare- when is it safe to drop back down to a maintenance level of Pred. ?

The flare started nearly 2 weeks ago when I was on 8mgs. and a week ago I went up from 8mgs to 9...
suzy1959 profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.