Fed up!!!!: I went to 6.5 in June and did... - PMRGCAuk

PMRGCAuk

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Fed up!!!!

Hunter134 profile image
6 Replies

I went to 6.5 in June and did experience some pain in muscles.I have tried to wait it out but now my back.hips groin and knees are sore.Iam feeling it's a bad flare so went to 10 MG's three days ago but have seen no improvement.Hope I don't have to start over.Gets me so defeated after 5 years.

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Hunter134 profile image
Hunter134
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6 Replies
Bcol profile image
Bcol

Hi, the flare protocol recommends an extra 5.0mg for up to two weeks. May be worth adding the extra 1.0mg and giving it a little longer.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Three days really isn’t long enough to get things under control. As suggested by Bcol see flare protocol - if you don’t remember it -

healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador

Never try to stick a return of symptoms out - you will always lose the battle against PMR!!

Not quite enough perhaps and not long enough - 3 days isn't long especially for only 3mg more than you really needed.

piglette profile image
piglette

I have learnt from bitter experience that it is never worth trying to wait it out. PMR always wins.

Hunter134 profile image
Hunter134 in reply topiglette

I was thinking it may be adrenaline deficit but I was obviously wrong.Thank you for setting me straight.

HeronNS profile image
HeronNS in reply toHunter134

I concur. I learned the hard way a couple of years ago. You need what you need. Pred withdrawal goes quickly, in a day or two. If it lingers or gets worse, then you know it's too low a dose. Remember our favourite sayings; "It isn't slow if it works" and "The lower the dose the slower the taper."

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