In the 9 months since my PMR diagnosis I've reduced from 15mg prednisone to 4.5mg. My symptoms when reducing have not included my initial PMR symptoms of upper arm and upper leg soreness and stiffness, and stiff neck, but I have had increased fatigue and sweating with reductions. Once I got to about 6 or 7 mg I experienced occasional inner-knee burning pain, tennis elbow, stiff/sore hands and feet, back pain, stomach pain, tightness behind knees, generally sore legs.
I'm wondering, when some of you mention symptoms with reducing prednisone, if you're referring to those typical PMR symptoms of upper arm and upper leg soreness and stiffness, or if you're having these other types of symptoms I'm experiencing? The last time I saw my rheumy a couple months ago, when I mentioned behind the knee pain/tightness, all he said was "that's not PMR." I guess I'm just trying to understand this disease. Would you say my symptoms, even though they may not be PMR, are symptoms I should listen to when reducing prednisone as though they were the typical PMR symptoms? Or can PMR include some of these symptoms too? Is it unusual that I'm not having the more typical PMR stiffness when reducing?