PET Scan

[LemonZest11]

Me again … I have a PET scan booked for Thursday and so I am going to hold off on pred and TCZ until after that, at least. Very fortunate to get the appointment so quickly. I had blood and wee tests this morning for everything under the sun, one of them even mentioned “gold” 🤷‍♀️. Hopefully I’ll have some answers by next week. But I still suspect the old dripping tap that I have been so wary of, hope it’s nothing worse!! Thanks for the support, all of you. Xx

[DorsetLady PMRGCAuk volunteer]

Hello you,

Hope all okay, sure you’ll let us know. 😊

[LemonZest11 in reply to DorsetLady]

I will DL, thank you for support and reassurance xx

[PMRpro Ambassador]

That's good - and a good idea to delay the TCZ and pred, it will potentially answer whether the effect of the TCZ is waning before the next injection. I suspect that happens when they try to use infusions despite the much higher single dose so equally possible.

[LemonZest11 in reply to PMRpro]

I will let you know. Thanks PMRpro, or always being there xx

[Rugger]

Hopefully the scan and all the other tests will give you an answer and help to make a plan for the next steps.

We'll be thinking of you on Thursday.

[LemonZest11]

Thank you Rugger. Onwards. Hope you are doing well, isn’t this group amazing?

[SheffieldJane]

Fingers crossed for you. 🌸

[LemonZest11 in reply to SheffieldJane]

Thank you Jane, honorary Aussie. Xxx