Annoying Stiffness: After 8 years I have managed to... - PMRGCAuk

PMRGCAuk

21,320 members40,434 posts

Annoying Stiffness

diana1998 profile image
6 Replies

After 8 years I have managed to get down to 2mg over the last year. But my problem is I'm very stiff now when walking around and walking up the stairs. Absolutely no pain so very lucky there. I've just joined a small gym with a personal trainer who understands pmr to try to strengthen my muscles. But I'm wondering if the stiffness would go if I put up my dose? My regular bloods are always normal and my GP has let me self medicate over the years going down very slowly. I have just joined the 8zero club. My friends walk normally so keep thinking it must be the pmr??

Written by
diana1998 profile image
diana1998
To view profiles and participate in discussions please or .
6 Replies
PMRpro profile image
PMRproAmbassador

There is only one way to find out!!! Try it and see.

diana1998 profile image
diana1998 in reply toPMRpro

Ooooerrr......🤔nervous to increase!!

PMRpro profile image
PMRproAmbassador in reply todiana1998

You can try it for a few days, up to a week or so and drop straight back to where you were before if it doesn;t help. But really - quality of life is what you are aiming for and if 3mg were make a big difference to the stiffness, it is still a low dose.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply todiana1998

Why? As PMR-has said you may only require a small increase- and QOL is important. For the sake of a mg or two, I’d be giving it a go.

Gimme profile image
Gimme

Has your PT given you any stretching exercises? If you are reluctant to try the pred, try some gentle stretching for 10 or 15 minutes at the beginning of each day. If the stiffness is not due to the PMR, you should start to notice a difference within a week or so.

ponai profile image
ponai

Stiffness has been a problem since I started pred 7 years ago- it solved the severe pain, but never the stiffness. I'll be interested to hear how you get on. I suspect there's something else going on. I'm worse today after a very pleasant 2 mile walk yesterday and am remembering that even before PMR I was gradually cutting back on weekly walks- 10 miles, 7, then 5 etc because I'd be so stiff, and it helped to take paracetamol before I set out, not afterwards. PMR does complicate things. It's hard to separate out the different problems, though very glad your stiffness doesn't hurt. It does seem to go with a lack of balance that also varies, but I'd expect a more definite pattern if it were a flare. I've been at 3, now at 6, not much difference.

Not what you're looking for?

You may also like...

hip stiffness

I was finally diagnosed with PMR in July last year although I’d had all the symptoms for over 6...
Nanatoo profile image

Extreme Stiffness

Hello Everyone, I have experienced stiffness since my 50's especially after sitting for any length...
Louisa1840 profile image

Lower back pain and stiffness

2019 diagnosed with GCA, 45mg Pred tapering down to 4mg over the year and no return symptoms of...

Well that's annoying.

I've been getting and keeping intense headaches over the last 6 days. I went to Dr's last night...
IdasMum profile image

Pain in calf muscle

Since starting Methotrexate end October 2022 I have been very slowly reducing my Pred, I am...

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.