P.S. This is what pred 'enabled'!!

[Kendrew]

I couldn't resist sharing this. Without the extra pred, this wouldn't have been possible.

[DorsetLady PMRGCAuk volunteer]

🌸

[piglette]

Wow what a lovely photo. You look FANTASTIC.

[Greensleeves]

Stunning Kendrew absolutely beautiful 😍

[Merryfield]

Handsome couple!

[SheffieldJane]

congratulations! You both look lovely. Xx

[Bcol]

Fabulous picture.

[whitefishbay]

Congratulations!

[diana1998]

Brilliant!👏

[Jackoh]

Absolutely brilliant! Lovely photo 💐

[Kendrew in reply to Jackoh]

Thankyou ❤

[123-go]

You made it! So happy for you! One of the most important occasions in a mother’s life is seeing her son married 🎊 and you did it so well! 🥂xxx

[Kendrew in reply to 123-go]

❤ ❤ ❤

[Janet57]

Fabulous-what a lovely picture. 💐

[Lclmlbls]

What a lovely photo. How do you stay so slim? And not even a hint of a moon face!

[Kendrew in reply to Lclmlbls]

Haha!.... hard work!! I eat a low (but not no carb diet).... unless its my sons wedding!.... and then I gorge on everything that's put infront of me! 😄 I go to the gym for gentle exercise and I do some yoga. I'm also now normally on just 3mgs of pred.

[Lclmlbls in reply to Kendrew]

Well it’s working for you! I look forward to the time I can manage on 3mgs. I’m tapering (for a second time) to 9.5mg but struggling to keep my weight down. I do try to keep carbs down but it’s hard! I’m thinking it may be an idea to ask fellow PMR sufferers to share their favourite low carb meal to help others (me!) get some ideas. Maybe it could be a similar offshoot to the gardening. What do you think?

[Kendrew in reply to Lclmlbls]

Why not!...... I'm sure most of us would appreciate some low carb menu ideas, if only to add some extra variety.

I for one love a salmon steak, brushed with olive oil, baked in the oven for 15mins and served with a salad made up of spinach leaves, cucumber, avocado, red pepper, tomato, and a few green olives.

[Fries in reply to Kendrew]

I love fish and salad dishes x

[2Yellowdaffodilsx]

Hi Kendrew, ah the memories! Love your outfit! Super pic of you both! Our youngest son married aft 20yrs together on Fri 1st Sept. Their 9yr old son was Best Man! I was whizzed round the dance floor in my wheelchair! I walk with aids at home but not ready for dancing. So pleased you had such a wonderful day! Snap! Now enjoy the photos! Theyre now in Lanzarote for a " family moon!" Lots love & best wishes xxx

[Kendrew in reply to 2Yellowdaffodilsx]

That sounds absolutely wonderful too...... and whizzing around the dance floor in your wheelchair a huge amount of fun. Well done to you too. I'm hlad you had such a lovely day too. Congratulations to your son & wife.

[2Yellowdaffodilsx in reply to Kendrew]

Thanks Kendrew lovely reply. Fancy just 2mg making such a difference! Well done a lesson for us all! Take care, much love xx

[Kendrew in reply to 2Yellowdaffodilsx]

You too. ❤

[Poshdog]

Absolutely brilliant 👏 xx ps I want your hat!

[Kendrew in reply to Poshdog]

Haha!.... you can have it...I'm SO NOT a hat person.

[Poshdog in reply to Kendrew]

Woohoo, fold it up and stuff it in envelope!!! Xxx

[Kendrew in reply to Poshdog]

Private messaged you

[PMRpro Ambassador in reply to Kendrew]

I, OTOH, as mum of the bride didn't wear one!!!

[Charlie1boy]

Lovely photo. Could only be your time spent in Yorkshire that makes you look so good!

Paddy

[Kendrew in reply to Charlie1boy]

Haha!..... Yorkshire water. Yorkshire Air and Yorkshire spirit maybe. 😄

[Charlie1boy in reply to Kendrew]

Absolutely, and a tough Yorkshire lass n’all, 😂

[Decsgran]

Lovely photo!

[Gaz227]

Congratulations , now that’s what I call a result 👍🥳😀

[Pixix]

Brilliant! You look fantastic, what a great result! Congrats, S x

[York54]

Lovely 👏👏👏👏

[Viveka]

You both look fab!

[Suffolklady]

Lovely couple congratulations. You did the right thing Kendrew for YOU the Rheumatologist hasn’t got a clue what the difference it made on your day. X

[Kendrew in reply to Suffolklady]

She's going to find out next week though as I intend to tell her that in light of her and her colleague being unable to make any decisions or take any action, I had no option but to take control of the situation myself.....very politely of course!

[PMRpro Ambassador]

Lovely - I think you should send it to your grumpy rheumy. And explain life is too short to dispute the use of a few mg of pred to enable such events. My memories of my daughter's wedding are fare less pleasant as I was recovering from what was probably my worse period. I shudder looking at the pictures that they managed to catch me in - I did a fairish job of avoiding most of them!

[Kendrew in reply to PMRpro]

I definitely intend to bring it up as I have an appointment on Fri. Whats the worst she can do?.... slap my wrists??

[PMRpro Ambassador in reply to Kendrew]

Strike you off? Would be doing you a favour ...

[Kendrew in reply to PMRpro]

Don't worry....I also have contingency plans in place should that happen too!!

[Suffolklady in reply to Kendrew]

It just proves that the extra few mg helped you and tbh I’m sure she’ll not say to much about it aren’t we in control of our own body?

[Telian in reply to PMRpro]

Life definitely too short. My younger brother passed away unexpectedly yesterday.

[Kendrew in reply to Telian]

Oh Telian!I'm so very sorry to hear that. I send you my deepest condolences and love.

[Telian in reply to Kendrew]

Thank you 🌺

[PMRpro Ambassador in reply to Telian]

So sorry - Virtual hugs xxxx

I'm never sure which is worse, suddenly and unexpected or after a long illness. I'm inclined to choose the latter because everyone suffers for so long with that and it is still horrible at the end even if you knew it was inevitable. Suddenly leaves you dazed and confused - but you know they didn't suffer.

[Telian in reply to PMRpro]

Thank you x

We’ve had both this year. More of a shock the sudden one. x

[PMRpro Ambassador in reply to Telian]

It's a different experience - neither of them nice,

[DorsetLady PMRGCAuk volunteer in reply to Telian]

So sorry to hear, my condolences..🌸

[Telian in reply to DorsetLady]

Thank you DL. 🌺

[Fries in reply to Telian]

I am so sorry for your loss.

[Telian in reply to Fries]

Thank you Fries. 🌺

[Fries in reply to Telian]

Sending big hugs😘

[Hidden in reply to Telian]

I'm very sorry to hear thus.Sending hugs💐

x

[Telian in reply to Hidden]

Thank you Wouldlovetorun. 🌺

[sidra1968]

Lovely photo!

[Lochy]

Absolutely fabulous! These significant moments in life are worth more than a couple of extra mg of pred for a day or so. ❤️🥂

[Kendrew in reply to Lochy]

Definitely.

[Fries in reply to Lochy]

Hear hear!

[Pollyanna16]

From one Yorkshire lass to another, gorgeous hat & gorgeous photo😍

[Kendrew in reply to Pollyanna16]

Thankyou. ❤

[Songbird69]

Wonderful photo. So glad you had the BEST day.

[Kendrew in reply to Songbird69]

Thankyou ❤

[Fries]

What a beautiful photo of you and you look so well!

[Kendrew in reply to Fries]

Thankyou. Yes...I felt pretty good 👍

[Hidden]

You look radiant and what a lovely couple photo.One for a photo frame🤗

Congratulations 🎊 on a gained daughter in law🤗

x

[Kendrew in reply to Hidden]

Thankyou so much.

[annie_marie]

What a lovely, supporting, genuine forum this is. You look absolutely radiant, with no sign of illness. Well done.

Congratulations to you all. 👏

[Kendrew in reply to annie_marie]

Thankyou. That was the intention! 😄

[annie_marie]

What a lovely, supporting, genuine forum this is. You look absolutely radiant, with no sign of illness. Well done.

Congratulations to you all. 👏

[Kendrew in reply to annie_marie]

Thankyou ❤

[Missus835]

Brilliant pic, Kendrew. So happy that those extra 2 mg. made it possible.

[Kendrew in reply to Missus835]

Thankyou ❤

[Harrywogan]

Kendrew, beautiful photo and very handsome couple you look wonderful, Harry x

[Kendrew in reply to Harrywogan]

Thankyou for your kind words. 😊

[Melti]

What a lovely photo Kendrew, you look amazing, and so well

[Kendrew in reply to Melti]

Thankyou. I feel quite tired now but no more than anyone normally would so I'm very happy with the outcome.

It pays to plan ahead carefully before any big 'event'.....certainly in my case.

Without the knowledge gained and information & advice shared here, I would not have known to even try to tweak my dose of steroid for a few days over this period.