rheumatologist: someone posted about a... - PMRGCAuk

PMRGCAuk

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rheumatologist

Bedwell profile image
9 Replies

someone posted about a rheumatologist called Charlotte Wing in Hertfordshire.who really understood pmr problems! My gp referred me to her at hospital at St Albans in November, who said if I hadn’t heard anything by Jan 8th to contact them. When I spoke to them eventually! They said they were dealing with referrals from July!!!

also can’t ask for specific specialist.

rheumy I had originally took me off his list as said I was doing ok! Now on 6.5 after starting at 15 in July 2021. Would so value contact with someone recommended and who knew the ins and outs of this complex condition! As I have various symptoms!!! Haven’t we all at 84!!!

so value this forum! Thanks all!Bedwell

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Bedwell profile image
Bedwell
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9 Replies
PMRpro profile image
PMRproAmbassador

Sounds as if your GP in cloud cuckoo land. I do understand WHY they claim you can't be referred to someone specific, they USED to manage it, but it does make so much more sense to see someone who is good at YOUR problem.

Linlang profile image
Linlang in reply to PMRpro

I’m in the Watford area and found my PMR poorly managed by one of the consultants at Watford General( in confidence my g.p. agreed that rheumatology was poorly led)I have struggled through with help from my g.p.

If you possibly can have a private consultation with a rheumatologist who understands P.M.R.

Bedwell profile image
Bedwell in reply to Linlang

yes! Did look up Charlotte Wing! Diff to get her details as to where she practices! Probably inundated!

Bedwell profile image
Bedwell in reply to Bedwell

charlotte Wing doesn’t have a private practice! 8 month wait to see a rheumatologist!!!! Investigating other private practitioner in the area. Hertfordshire. .. really to see if throbbing knees and feet at night are connected with predisoline. Also have burning ears at night!!!

Linlang profile image
Linlang

Did look her up Hemel seems a main hospital for her. Suggest you ring switch board and ask to speak to her secretary.

Bedwell profile image
Bedwell

thanks. Don’t know if I could drive there! Bit too far and don’t know area at all! Suppose if I go private I might as well pay for a taxi too?!?!?!

piglette profile image
piglette in reply to Bedwell

If you have a good GP you may not need a rheumatologist. Around 75% of people with PMR never see one.

Bedwell profile image
Bedwell in reply to piglette

all seem to have different ideas! Never see the same one!? Most have left!

piglette profile image
piglette in reply to Bedwell

I last saw my GP face to face in May 2016! I have talked on the phone since and had a few blood tests.

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