Trying to have fun: Iam in Niagara falls for a... - PMRGCAuk

PMRGCAuk

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Trying to have fun

Hunter134 profile image
23 Replies

Iam in Niagara falls for a couple of days and I've been getting bleeds under my skin.Has anyone experienced this?I rubbed my arm with a rough towel.Came out bleeding.Scared me.Anybody else get these red blotches under skin?

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Hunter134 profile image
Hunter134
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23 Replies
piglette profile image
piglette

I have purpura caused by the steroids. The blood spots disappear again after a couple of weeks. At a lower dose I still get them, but around 10mg to 15mg I looked as if I had had a fight with a wild animal sometimes!

Hunter134 profile image
Hunter134 in reply topiglette

Thanks for replying.Its always something with this darn disease.Feel better now

Amkoffee profile image
Amkoffee in reply topiglette

Between the blood thinners and the steroids I looked awful. Then one day my granddaughter said she was afraid for me. I explained the reason why I was getting them and this calmed her down.

piglette profile image
piglette in reply toAmkoffee

Oh no and in the Archers they were saying young people liked being frightened! Perhaps if you dressed up in a pointy hat with a green face she might like it!

Hunter134 profile image
Hunter134 in reply toAmkoffee

They do look terrible.I never knew the skin gets so thin where the simple rubbing can make them bleed.

PMRpro profile image
PMRproAmbassador

Most of us probably! Pred weakens the capillary walls and they leak causing the red spots, petechiae and purpurae, in response to even slight provocation.

Hunter134 profile image
Hunter134 in reply toPMRpro

thank you I've never had them before.Scared me.But I ll have much more fun with validation that others have had them

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Quite common with Pred - looks a lot worse than it is. Early days (on holiday) I just brushed my arm against a radiator -same effect as you -sent the rest of the family into a spin.

I learned after that to try and protect forearms in particular as much as possible.

Hunter134 profile image
Hunter134 in reply toDorsetLady

Thank you with quick response.Its always something with this disease.Trying so hard to taper aft over three years.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toHunter134

Yep ..fun isn’t it! 😳

Bridge31 profile image
Bridge31

Happens to me all the time. They don’t hurt unless the skin is actually broken then they take a long time to heal and the discolouration doesn’t go away. It fades but like piglette my legs look like they have been in a serious accident.

Hunter134 profile image
Hunter134 in reply toBridge31

Oh dear.So far I get them on lower arms.Who knows where they ll go next.

Theziggy profile image
Theziggy

I have had bleeds for no reason

Exflex profile image
Exflex

Add Aspirin to the mix and guess what… Currently transitioning from 2.5 to 2mg of Pred, but still bruise easily. My right hand has a permanent change of colour above the thumb / 1st finger. My GP explained it was due to iron in the blood.

Tiggy70 profile image
Tiggy70

I get the red patches a lot. Try to keep your arms covered particularly when doing something like gardening.

Hunter134 profile image
Hunter134 in reply toTiggy70

Yes I guess our skin has thinned with age and prednisone.Ive just never had them before.Getting old sucks but still glad to be alive.lol

GCAinCarolina profile image
GCAinCarolina

Yes, it's totally aggravating. Lots of the purpura , seem to be confined on arms and legs. Combine that with ultra-thin skin and you can get bleeding events for almost no reason (and regular bandaids can pull the skin off, making it worse). Frustrating,but hoping that eventually getting off prednisone will bring those things back to normal.You are definitely not alone!!!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGCAinCarolina

Use plasters/bandaids that are especially produced for sensitive/thin skin...then you don't tear surrounding area

PMRpro profile image
PMRproAmbassador in reply toDorsetLady

Even better is a non-stick dressing held in place with a product like Self Fix.

Tiki15 profile image
Tiki15

I have them sometimes but smallish. I even had one on the corner of my eye where I had been rubbing it.

Hunter134 profile image
Hunter134 in reply toTiki15

Well I wouldn t want one near my eyes.I ve just been getting little ones til now.Was in Niagara Falls and took a shower.Their towels are rough and I walked out of bathroom with blood dripping down my arm.It scared me but I scare easy.lol Thanks for replying

Tiki15 profile image
Tiki15 in reply toHunter134

oh my that would have been scary. Mine wasn’t bleeding out just a red looking bruise. Take care. X

Hunter134 profile image
Hunter134 in reply toTiki15

Thank you.Same to you.Stay safe.

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